"This fascinating collection examines the socio-economic factors that impact the well-being of patients with Sickle-Cell Disease (SCD) in sub-Saharan Africa, and the critical importance of patient advocacy in the region. The book looks at a number of keyissues, including the social determinants that influence the spread of the disease, the quality of life of children with SCD, the impact of stigma, and the broader psychosocial burden of such a prevalent condition. There are also chapters on policy and Public Health management, including collaborations with NGOs and global partners. The second in a two-volume set offering a multi-disciplinary perspective on SCD, this insightful collection highlights many of the hidden issues faced across the region. It will be important reading for students of both Public Health and Medicine, as well as practitioners working for governments or NGOs"--
This fascinating collection examines the socio-economic factors that impact the well-being of patients with Sickle-Cell Disease (SCD) in sub-Saharan Africa, and the critical importance of patient advocacy in the region.
This fascinating collection examines the socio-economic factors that impact the well-being of patients with sickle cell disease (SCD) in Sub-Saharan Africa and the critical importance of patient advocacy in the region.
The book looks at a number of key issues, including the social determinants that influence the spread of the disease, the quality of life of children with SCD, the impact of stigma and the broader psychosocial burden of such a prevalent condition. There are also chapters on policy and Public Health management, including collaborations with non-governmental organisations (NGOs) and global partners.
The second in a two-volume set offering a multi-disciplinary perspective on SCD, this insightful collection highlights many of the hidden issues faced across the region. It will be important reading for students of both Public Health and Medicine, as well as practitioners working for governments or NGOs.
Introduction
Chapter 1 Bridging the Gap
Chapter 2 Social
Determinants of Severity in Sickle Cell Disorders
Chapter 3 Health-related
quality of life of children and adolescents with sickle cell disease
Chapter
4 The Challenge of Data with SCD: A Public Health Crisis
Chapter 5
Examining the Limited Global Focus on Sickle Cell Disorder and Its
Implications for Nigerias Legal Framework: A Social Constructionism
Perspective
Chapter 6 Sickle Cell Disorder and Its Psychosocial Burdens in
Africa
Chapter 7 The Critical Importance of Global Collaboration in SCD
Advocacy and Management
Chapter 8 Reducing sickle cell disease stigma in
Africa: Successes and Challenges
Chapter 9 Support Activism - The Role of
NGOs And Policy Makers
Chapter 10 Public Health and Social Implications for
Management and Control of Sickle Cell Disease in Developing Countries
Baba Inusa, MBBS (ABU 1984), FMCPaed (Nigeria, 1992), FRCPCH (UK, 1997), is Professor of paediatric haematology, Evelina London Childrens Hospital, Guys and St Thomas NHS Foundation Trust.
Kanayo Nwankwo, MD, is the Chief Resident and a lifespan sickle cell advocate, currently serving at Brookdale University Hospital in Brooklyn, NY.
Nkechikwu Azinge-Egbiri, LLB (Hons), BL, LLM, PhD (Warwick), is a Lecturer at the School of Law, Lancaster University and Founder of the Sickle Cell Aid Foundation (SCAF), a youth-led NGO she established to raise awareness of Sickle Cell Disease (SCD) and support those living with it.
Bukola Bolarinwa is a qualified legal practitioner with an LLM in International Economic Law from the University of Warwick and LLB from the University of Leicester.
Rohkem infot Taylor & Francis e-raamatute kohta