Giving voice to the perspectives of children and families with lived experience of children’s palliative care, Music Therapy in Children’s Palliative Care: Collaborative Family and Practitioner Voices explores the integral role of music therapy and its benefits for supporting child and family wellbeing within a range of children’s palliative care settings. This book places the voices of children and families supported by children’s palliative care at the centre as they articulate their own experiences of music therapy alongside music therapists to develop theory and practice in this area.
Through their unique, collaborative writing approach, contributing authors ensure that both perspectives of the therapeutic relationship - those of the families and the therapists - are represented throughout, offering a comprehensive view of their shared journey. Readers will benefit from learning about how music therapy may offer physical, emotional, social and spiritual support, aiming to enhance quality of life for both children and families. Equality, inclusion and belonging operate at the heart of this book, capturing the diversity of families that use palliative care services.
This book is a must read for any music therapist working within a children’s palliative care setting. It will also be a compelling text for those with lived experiences, practitioners, educators, students and researchers.
This book places the voices of children and families supported by children’s palliative care at the centre as they articulate their own experiences of music therapy alongside music therapists to develop theory and practice in this area.
Introduction.
1. The Need for Belonging
2. Lines of communication:
creating continuing bonds on the neonatal unit.
3. Sophies Wonderful World:
The Impact of Music Therapy on a Family Caring for a Life Limited Child
4.
Freyas Light
5. The Power of Connection: Family-Centred Virtual Music
Therapy Groups
6. Alive, brave and free. Thats what music means to me:
celebrating the diverse voices of a childrens hospice community through
collaborative songwriting
7. Music Therapy in Paediatric Palliative Care: A
link between the Hospice and Hospital.
8. "Things change and that's the way
it is": Therapeutic songwriting with young adults transitioning from
paediatric palliative care
9. The Gods of Music
Victoria Kammin is a music therapist from Surrey, UK, who specialises in paediatric palliative care. She is Director of Resonance Creative Therapy, Lecturer on the MSc Music Therapy training at Queen Margaret University and undertaking her PhD at the University of York with the Paediatric Palliative Care Research Group.
Julie Russell is a freelance illustrator, teacher and lived-experience practitioner from Essex, UK. She has been married for over 25 years, is mother to a teenage son, and a bereaved parent to a toddler. Julie has given motivational talks about her familys experiences with paediatric palliative care and is a member of the Family Advisory Board at The Paediatric Palliative Care Research Group, University of York, and Cicely Sanders Institute, Kings College London.
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