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Death or Disability?: The 'Carmentis Machine' and decision-making for critically ill children [Pehme köide]

(University of Adelaide)
  • Formaat: Paperback / softback, 320 pages, kõrgus x laius x paksus: 234x156x17 mm, kaal: 486 g
  • Ilmumisaeg: 06-Apr-2017
  • Kirjastus: Oxford University Press
  • ISBN-10: 0198799055
  • ISBN-13: 9780198799054
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  • Formaat: Paperback / softback, 320 pages, kõrgus x laius x paksus: 234x156x17 mm, kaal: 486 g
  • Ilmumisaeg: 06-Apr-2017
  • Kirjastus: Oxford University Press
  • ISBN-10: 0198799055
  • ISBN-13: 9780198799054
Teised raamatud teemal:
In ancient Rome parents would consult the priestess Carmentis shortly after birth to obtain prophecies of the future of their newborn infant. Today, parents and doctors of critically ill children consult a different oracle. Neuroimaging provides a vision of the child's future, particularly of the nature and severity of any disability. Based on the results of brain scans and other tests doctors and parents face heart-breaking decisions about whether or not to continue intensive treatment or to allow the child to die.



Paediatrician and ethicist Dominic Wilkinson looks at the profound and contentious ethical issues facing those who work in intensive care caring for critically ill children and infants. When should infants or children be allowed to die? How accurate are predictions of future quality of life? How much say should parents have in these decisions? How should they deal with uncertainty about the future? He combines philosophy, medicine and science to shed light on current and future dilemmas.

Arvustused

This book reflects a remarkable blend of philosophical sophistication and clinical expertise . . . Wilkinson's book will be mandatory reading for philosophers and clinical ethicists who are writing on, or working with, critically ill children and their parents. * J. Paul Kelleher, Mind * this is a wonderful book: wise, clever, humane, realistic and humble. It will be, and richly deserves to be, the cornerstone of academic and practitioner debate about this terrible, and terribly important area of ethics and medicine. * Charles Foster, European Journal of Health Law * His style, clear and simple for a work on a subject of considerable complexity, and yet profound in its way of dealing with issues more related to philosophy and ethics, make this book a read of great interest not only for professionals pediatric medicine, but also for affected families and for anyone who wants to know the problems of bioethics from a multidisciplinary perspective. * Revista Española de Discapacidad * the best book of the decade in bioethics . . . this is a book that must be read by everybody who is seriously interested in the bioethical issues that arise in neonatal intensive care or, more generally, in decision making for children with chronic, debilitating or life-threatening conditions. * John D. Lantos, Notre Dame Philosophical Reviews * this was an interesting read, comprehensive, analytical, and thought-provoking . . . Wilkinson does a good job of articulating and providing evidence to support his point of view. He successfully accomplishes what he sets out to do, while keeping the reader entertained with historical points, clinical examples, and philosophical theories and vignettes. * Marlyse F. Haward, The American Journal of Bioethics * The author skilfully draws on his training in philosophy, bioscience and clinical practice to offer an analysis that is original, not merely in content but also in form. Wilkinsons comparison of the Carmentis Machine with contemporary neuroimaging is inspired. * Deborah Bowman, Times Higher Education Supplement *

List of Figures and Tables
viii
Prologue 1 The Temple of Carmentis 30 AD
1(4)
Prologue 2 The Carmentis Machine 2030 AD
5(6)
Introduction: Neuroethics and Intensive Care
11(10)
Part I Death and Grief in the Ancient World
21(138)
1 Destiny, Disability, and Death
23(23)
Carmentis
45(1)
2 Best Interests and the Carmentis Machine
46(36)
3 Starting Again
82(26)
Exposure and Infanticide in Ancient Rome
105(3)
4 Competing Interests
108(51)
Part II Predictions and Disability in Rome
159(150)
5 Sources of Uncertainty---Prognostic Research
162(40)
6 Managing Uncertainty
202(34)
7 Interests and Uncertainty
236(25)
8 The Threshold Framework
261(48)
Index 309
Dominic Wilkinson is Professor of Medical Ethics at the Oxford Uehiro Centre for Practical Ethics, University of Oxford, research fellow at Jesus College, and a consultant neonatologist at the John Radcliffe Hospital, Oxford.