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Decision Trap: Genetic Education and Its Social Consequences [Pehme köide]

  • Formaat: Paperback / softback, 200 pages, kõrgus x laius x paksus: 210x135x10 mm, kaal: 200 g, 1 Bibliography; 1 Index
  • Ilmumisaeg: 01-Jun-2015
  • Kirjastus: Imprint Academic
  • ISBN-10: 1845407768
  • ISBN-13: 9781845407766
Teised raamatud teemal:
Decision Trap: Genetic Education and Its Social ConsequencesSuurem pilt
  • Formaat: Paperback / softback, 200 pages, kõrgus x laius x paksus: 210x135x10 mm, kaal: 200 g, 1 Bibliography; 1 Index
  • Ilmumisaeg: 01-Jun-2015
  • Kirjastus: Imprint Academic
  • ISBN-10: 1845407768
  • ISBN-13: 9781845407766
Teised raamatud teemal:
Püsilink: https://www.kriso.ee/db/9781845407766.html
Märksõnad:

The Decision Trap questions a dogma of our time: the assumption that genetic education empowers citizens and increases their autonomy. It argues that professional instructions about genes, genetic risks, and genetic test options convey a genetic worldview which destroys self-confidence and makes clients dependent on genetic experts and technologies. Part one of the book introduces the reader to the idea of genetic education. It clarifies the notion of the "gene" as it is commonly understood, and shows that, scientifically, the concept of genes as definable, causal agents is outdated. Part two of the book investigates the hidden curriculum of genetic education, using genetic counselling as a prime example. Genetic counselling is a professional service that aims to enable clients to make autonomous decisions about genetic test options and cope with the results.



The Decision Trap questions a dogma of our time: the assumption that genetic education empowers citizens and increases their autonomy.
Acknowledgment v
Preface to the English Edition vii
Barbara Katz Rothman
Preface to the German Edition xi
1 Introduction: Gene as the Basis for Decision Making?
1(7)
Distancing as a research approach
5(3)
2 Genetic Education
8(39)
2.1 The Gene
8(9)
2.2 Educational Campaigns
17(1)
2.2.1 Illiterate citizens? A Bremen congress
17(4)
2.2.2 The genetic literacy campaign
21(6)
2.2.3 Genetic counselling
27(4)
2.3 On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics
31(1)
2.3.1 The scientific management of hereditary dispositions
31(2)
2.3.2 More effective than coercion: Education and responsibility
33(4)
2.3.3 A new goal: The informed decision
37(10)
3 "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination
47(93)
3.1 The Initial Transformation of the Person: The Client as a Gene Carrier
49(1)
3.1.1 The genetic person
49(2)
3.1.2 The incomprehensible self
51(5)
3.1.3 Things in the body
56(9)
3.1.4 Hidden causes
65(3)
3.1.5 Meaningful information
68(4)
3.1.6 Internal agents
72(2)
3.1.7 Genes as an "illusion"
74(3)
3.2 Second Transformation of the Person: Clients as Risk Carriers
77(1)
3.2.1 A grave misunderstanding: Risk as diagnosis
78(3)
3.2.2 The client as a statistical construct
81(5)
3.2.3 The pathogenic effects of physician-attested risks
86(3)
3.2.4 Life in irrealis mood
89(6)
3.2.5 The genetic risk
95(7)
3.2.6 The genetic self
102(3)
3.3 The Compulsion to Risk Management: The Decision
105(2)
3.3.1 The imperative of the autonomous decision
107(2)
3.3.2 The option requiring a decision: The test
109(6)
3.3.3 Self-determined helplessness
115(8)
3.3.4 Decision making: The paradox of personal risk assessment
123(11)
3.4 The Decision Trap
134(6)
4 Conclusion: Disempowering Autonomy
140(7)
4.1 The Tyranny of Choice
140(3)
4.2 Autonomous Decision Making as Social Technology
143(2)
4.3 Conclusion: Now What?
145(2)
Transcription Conventions 147(1)
Bibliography 148(20)
Index 168