This timely Research Handbook examines the key challenges for the governance of biomedicine and the life sciences. It explores the impact of significant political, technological and ecological developments on international governance and considers ethics in times of global crisis.This title contains one or more Open Access chapters.
This timely Research Handbook examines the key challenges for the governance of biomedicine and the life sciences. It explores the impact of significant political, technological and ecological developments on international governance and considers ethics in times of global crisis.
Leading experts discuss the ways in which digitalization and AI have disrupted communication and knowledge infrastructure, while highlighting the threats posed by climate change and biodiversity loss to ecological stability. They investigate how the system of governance by law has been challenged by the erosion of public spaces and democratic political systems, while regulatory tools such as ethics committees, participatory structures and self-regulation are unprepared for emerging issues. The Research Handbook demonstrates the importance of developing novel methodological tools to interpret these problems within the field of bioethics. It further proposes a roadmap for future research and practice, outlining how the life sciences can provide new possibilities for human health and well-being.
Scholars and students of law and society, legal philosophy and legal theory will greatly benefit from this illuminating Research Handbook. It is also a useful resource for those studying bioethics, moral philosophy and the social sciences.
Arvustused
Our world is in rapid change, and one crisis follows the other. In recent decades bioethics and inclusive governance promised to be an instrument to safeguard good ethics and the public good. But can we maintain this hope in view of trends to the opposite? This book acknowledges the current challenges and still provides some positive outlooks. Governance, law and bioethics will need to change, and salient signposts are marked in this book. A timely and important read indeed. -- Matthias Kaiser, University of Bergen, Norway Handbooks tend to be outdated when they appear. This Handbook is different. It courageously faces the challenges of the future of biomedicine and deploys the options open to national and international legal systems to deal with them. -- Dieter Birnbacher, Heinrich-Heine-University Düsseldorf, Germany
Contents
Introduction to law, governance and bioethics: looking back, looking forward
1
Deryck Beyleveld, Roger Brownsword and Marcus Düwell
PART I METHODOLOGY AND BIG CHALLENGES
1 Bioethics and biolaw confronting the ongoing process of neo-feudalism: a
feminist critical perspective 33
Gabriela Arguedas-Ramírez
2 The future possibility of bioethics, biolaw and the rule of law 50
Deryck Beyleveld and Roger Brownsword
3 Bioethics and human nature: perspectives from philosophical
anthropology 71
Marcus Düwell
4 Care for the common home: Christian bioethics in the twenty-first
century 86
Hille Haker
5 Collective responsibility in a world in crisis 104
Barbara Prainsack
PART II BETTER GOVERNANCE
6 Bioethical expertise and the case for lay participation 120
Ruben Andreas Sakowsky and Silke Schicktanz
7 The idea of governance in One Health 135
Benjamin Capps
8 From knowledge-based regulation to transitional law: developing
appropriate legal responses to risks of global ecological collapse 159
Olivia Woolley
9 Risk in bioethics 177
Sven Ove Hansson
10 Musings on research ethics policy: progress, inclusion and good
governance 192
Eric M. Meslin
11 Dialogical bioethics: communicative practices in healthcare, research and
policy 210
Vilhjálmur Árnason
12 Regulation as play: establishing a normative basis for the regulatory
sandbox in human health research 226
Graeme Laurie
PART III
BIOETHICAL TOPICS
13 Crossroads in the bioethics of reproduction 248
Judit Sándor
14 Governance challenges for heritable human genome editing: contested
concepts and lines 266
Rosamund Scott
15 AI and governance: law, politics, and bioethics 287
Deryck Beyleveld and Roger Brownsword
16 Rights and duties in and regarding communicable disease epidemics and
pandemics 318
Klaus Steigleder, Marie Göbel and Philipp Richter
17 Stakeholder engagement, disruptive technology and governance of
population health screening programmes: a UK perspective 334
Jeffrey Wale
PART IV
GLOBAL DIMENSIONS
18 Equitable access to essential health technologies during global health
emergencies: a sub-Saharan African perspective 351
Pamela Andanda
19 Biolaw and global catastrophic risks: building anticipatory governance
for
emerging technologies 367
Erick Valdés and Juan Alberto Lecaros
Edited by Deryck Beyleveld, Professor of Law and Bioethics, Durham Law School, Durham University, Roger Brownsword, Professor of Law, Kings College London and Bournemouth University, UK and Marcus Düwell, Institute for Philosophy, Technical University Darmstadt, Germany
