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E-book: Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop

  • Format: 102 pages
  • Pub. Date: 28-Dec-2018
  • Publisher: National Academies Press
  • Language: eng
  • ISBN-13: 9780309482509
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  • Format: 102 pages
  • Pub. Date: 28-Dec-2018
  • Publisher: National Academies Press
  • Language: eng
  • ISBN-13: 9780309482509
Other books in subject:

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In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training.





International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated datathis is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well.





A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domainsall within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.

Table of Contents



Front Matter 1 Introduction and Overview 2 Privacy, Security, and Confidentiality of Data Sharing and Storage 3 Emerging Technologies and the Social Landscape 4 Reports from the Breakout Sessions 5 Final Thoughts and Next Steps References Appendix A: Workshop Agenda Appendix B: Statement of Task Appendix C: Guiding Questions for the Breakout Sessions Appendix D: Speaker and Moderator Biographies
1 Introduction And Overview
1(16)
Framing the Issues
3(14)
Ethical Considerations
4(4)
Examples of Multinational Collaborations
8(6)
Conflict between Publication and Privacy
14(3)
2 Privacy, Security, And Confidentiality Of Data Sharing And Storage
17(30)
The Upside and Downside: Protections, Incentives, Disincentives, and Risks
17(7)
Legal and Technical Concerns
18(4)
Political and Economic Concerns
22(2)
Domain-Specific Examples
24(12)
Communications and Space Science
25(1)
Health Care and Biomedicine
26(1)
Earth, Space, and Environmental Sciences
27(1)
Data and Disasters
28(5)
U.S. Government Statistical Data
33(2)
Engaging in Good Data Management Practices
35(1)
Sharing Responsibly: Data Ethics in Practice
36(3)
Equity, Sustainability, and Privacy
39(8)
Domination or Dependence for Data Collaboration in Africa
39(3)
Perspectives on Data, Cities, and Resilience
42(5)
3 Emerging Technologies And The Social Landscape
47(14)
The Internet of People and Things
47(4)
Artificial Intelligence
51(10)
Discussion
55(6)
4 Reports From The Breakout Sessions
61(4)
5 Final Thoughts And Next Steps
65(4)
References 69(4)
Appendixes
A Workshop Agenda
73(4)
B Statement Of Task
77(2)
C Guiding Questions For The Breakout Sessions
79(4)
D Speaker And Moderator Biographies
83