For over forty years, assisted reproductive technology (ART) has helped millions of patients around the world to overcome infertility. Careful monitoring of ART treatments and their outcomes is vital to maintain the remarkable pace of change in science and technology, whilst minimizing potential risks to infertility patients, and their children. Written by forty-five authors from twenty countries around the world, this book represents a global effort to document the history of assisted reproductive technology surveillance, and its dynamic challenges across the world. Comprehensive in its approach, the text details best practices in collecting and using ART surveillance data to monitor treatment effectiveness and safety, improve quality of care, develop health policy, and provide accurate information to infertility patients, worldwide.
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Offers a comprehensive guide to assisted reproductive technology surveillance, describing its history, global variations, and best practices.
| Foreword |
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vii | |
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viii | |
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Section 1 Introduction to ART Surveillance |
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1 | (11) |
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2 Importance and History of ART Surveillance |
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12 | (11) |
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Section 2 General Principles of ART Surveillance |
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3 ART Surveillance: Who, What, When and How? |
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23 | (8) |
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4 Future Directions for ART Surveillance and Monitoring Novel Technology |
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31 | (6) |
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Section 3 Using ART Surveillance Data |
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5 Reporting ART Success Rates |
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37 | (10) |
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6 Using ART Surveillance Data in Clinical Research |
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47 | (9) |
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7 Monitoring ART Safety and Biovigilance |
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56 | (13) |
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8 Quality Assurance of ART Practice: Using Data to Improve Clinical Care |
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69 | (12) |
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9 Monitoring Long-Term Outcomes of ART: Linking ART Surveillance Data with Other Datasets |
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81 | (12) |
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Anna-Karina Aaris Henningsen |
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10 Use of ART Surveillance by People Experiencing Infertility |
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93 | (8) |
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Section 4 Global Variations in ART Surveillance |
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11 Global ART Surveillance: The International Committee Monitoring Assisted Reproductive Technologies (ICMART) |
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101 | (15) |
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12 Global Variations in ART Policy: Data from the International Federation of Fertility Societies (IFFS) |
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116 | (8) |
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13 ART Surveillance in Africa |
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124 | (9) |
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14 ART Surveillance in Asia |
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133 | (9) |
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15 ART Surveillance in Australia and New Zealand |
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142 | (11) |
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16 ART Surveillance in Europe |
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153 | (10) |
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17 ART Surveillance in the Middle East: Governance, Culture and Religion |
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163 | (9) |
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18 ART Surveillance in North America |
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172 | (10) |
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19 ART Surveillance in Latin America |
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182 | (9) |
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Fernando Zegers-Hochschild |
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Section 5 Surveillance of Non-ART Fertility Treatments |
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20 The Importance of Non-ART Fertility Treatments in Public Health |
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191 | (9) |
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200 | (6) |
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| Appendix A ART Surveillance System Variables and Definitions |
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206 | (3) |
| Appendix B International Glossary on Infertility and Fertility Care |
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209 | (10) |
| Appendix C ICMART Data Collection Form |
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219 | (16) |
| Index |
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235 | |
Dmitry Kissin is a Epidemiologist and Health Scientist in the area of reproductive health. He received a Doctor of Medicine degree in Obstetrics and Gynecology from St Petersburg State Medical University, Russia and a Master of Public Health degree in Epidemiology from State University of New York. He is leading the ART Surveillance and Research Team in Maternal and Infant Health Branch, Division of Reproductive Health, US Centers for Disease Control and Prevention. His team maintains the National ART Surveillance System and monitors effectiveness and safety of ART in the United States and conducts wide-ranging epidemiological and clinical research on many aspects of infertility and ART. Dr Kissin has published over 100 manuscripts in peer-reviewed journals and several book chapters. G. David Adamson is a reproductive endocrinologist and surgeon, Clinical Professor ACF at Stanford University, and Associate Clinical Professor at University of California, San Francisco. He is Past President of the American Society for Reproductive Medicine (ASRM), the Society for Assisted Reproductive Technology (SART), AAGL and Fédération Internationale de Gynécologie et d'Obstétrique (FIGO) Reproductive Medicine Committee and several other major gynecological societies. He is Chair of ICMART and President of the World Endometriosis Research Foundation. He has over 300 scientific/medical publications and lectured extensively on ART, endometriosis and infertility. Dr Adamson helped lead development of the FIGO Fertility Toolbox, the Endometriosis Phenome and Biobanking Harmonization Project (EPHect), and he created the Endometriosis Fertility Index. He has also received many awards for contributions to reproductive medicine. Georgina Chambers is a University of New South Wales (UNSW) Scientia Fellow and Director of National Perinatal Epidemiology and Statistics Unit (NPESU), UNSW. She is the data custodian of the Australian and New Zealand Assisted Reproductive Technology Database (ANZARD) and a board member of the International Committee for Monitoring Assisted Reproductive Technologies (ICMART). Along with fifteen years' experience in both public and private healthcare sectors in Australia, she has a Ph.D. in health economics of assisted reproductive technologies (ART), and is considered an international expert in the health economics and epidemiology of ARTs. Christian De Geyter is a gynecological endocrinologist, as part of the division of Gynecological Endocrinology and Reproductive Medicine, at University Hospital Basel. He is the Chairman of the European IVF Monitoring Consortium, and also forms part of the research group Gynecological Endocrinology, in Switzerland.
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