Contributors' biographical notes |
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viii | |
Acknowledgements |
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xiii | |
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xiv | |
Introduction |
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1 | (4) |
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Section 1 What business are we really in? Managing and self-managing well-being |
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5 | (30) |
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1 Money matters! Personal budgets and direct payments |
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7 | (3) |
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2 Mainstreaming a chronic disease self-management programme reflections on the NHS Expert Patients' Programme |
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10 | (3) |
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3 Health promotion - connecting people and place |
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13 | (7) |
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4 Is a long-term condition a disability? Schools of thought and language |
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20 | (4) |
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5 Life as an active citizen - full engagement, hard work and well-being |
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24 | (3) |
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27 | (1) |
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7 Overview: Looking for a new social contract around the NHS |
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28 | (7) |
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Section 2 Questions of quality - not just ticking boxes |
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35 | (30) |
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37 | (2) |
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9 Using Experience-Based Co-Design to make cancer services more patient-centred |
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39 | (3) |
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10 How patient stories can change the commissioning culture |
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42 | (3) |
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11 Turning `care' into `share' |
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45 | (3) |
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12 Let me tell you a story |
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48 | (3) |
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13 Quality, leadership and moral responsibility |
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51 | (4) |
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14 Accounting for quality - eight tips for producing reports for the public about the quality of care |
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55 | (4) |
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15 Overview: Quality - fantastic journey but bumpy ride? |
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59 | (6) |
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Section 3 Governance - how can we really work together? |
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65 | (32) |
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16 Reminiscences of an advocate |
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67 | (2) |
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17 Researching together - pooling ideas, strengths and experiences |
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69 | (4) |
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73 | (3) |
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19 Supporting `experts by experience' - a champion idea |
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76 | (5) |
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20 Engaging communities - sharing the learning |
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81 | (4) |
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21 The engagement industry - some personal reflections |
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85 | (5) |
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22 Overview: Colliding worlds - the journey towards collaborative governance |
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90 | (7) |
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Section 4 How can information technology work for well-being? Data, dialogues and digital media |
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97 | (34) |
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23 Records help us make sense of our lives |
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99 | (2) |
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24 Records access and empowered patients, 2017 |
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101 | (4) |
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25 Learning to build a high-quality information system to support high-quality renal care |
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105 | (6) |
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26 Embracing social technology |
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111 | (2) |
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27 Enlightening the next user |
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113 | (2) |
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28 Patients' stories - digital gifts that can change the world |
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115 | (4) |
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29 Temptations of cheap data |
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119 | (3) |
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30 Overview: Innovation in cultures, feelings and roles |
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122 | (9) |
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Section 5 What kind of learning, what kind of leadership? |
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131 | (40) |
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31 Managers and leadership, now and then |
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133 | (2) |
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32 Harnessing a Hydra - managing to change the NHS |
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135 | (4) |
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33 "Ask the patient what they want" |
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139 | (2) |
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34 The heart and art of leadership |
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141 | (2) |
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35 Health leadership for the 21st century - a new, holistic, co-productive endeavour |
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143 | (6) |
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36 Forty years of innovation in community responses to the needs of people with learning difficulties |
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149 | (4) |
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37 From hard to reach to within reach - the `how' of community engagement in the era of the Big Society |
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153 | (4) |
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38 Disciplined conversation, facilitated dialogue, measured progress |
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157 | (3) |
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39 Leadership as if people matter - the Innovateve Headteachers Programme |
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160 | (4) |
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40 Overview: What kind of leadership? |
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164 | (7) |
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Postscript: Better health in harder times - towards a sustainable NHS |
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171 | (6) |
References |
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177 | (8) |
Index |
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185 | |