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E-raamat: Better Health in Harder Times: Active Citizens and Innovation on the Frontline

Edited by , Edited by (The Open University), Edited by (Independent Researcher and The Open University), Edited by
  • Formaat: 208 pages
  • Ilmumisaeg: 14-Nov-2012
  • Kirjastus: Policy Press
  • Keel: eng
  • ISBN-13: 9781447306955
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  • Formaat: 208 pages
  • Ilmumisaeg: 14-Nov-2012
  • Kirjastus: Policy Press
  • Keel: eng
  • ISBN-13: 9781447306955

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For years the NHS has been the most trusted of public institutions and the envy of many around the world. But today there is turmoil. Painful shortcomings in clinical care and patient experience, together with funding cuts, threaten to dig deep into service levels and standards. Seventy years of technically advanced medicine provided free to the population has produced a widespread perception of patients as passive consumers of health care.



This book explores how we may renew for our times the collective compact that created our public services in the 1940s. Voices from service users and service providers show how this can be done. They offer testimony of what goes wrong and what can be put right when working together becomes the norm. Sections explore new ways of living and working with long-term conditions, more meaningful and effective approaches to service redesign, use of information technology, leadership, co-production and creating and accounting for quality. Accessible to a wide range of readers, with short, accessible contributions, this is a book to provoke and inspire.

Arvustused

"This invaluable text will ensure that the current political rhetoric 'no decision about me without me' will become the inclusive, collaborative reality, so urgently required in the current austere health economy." Roswyn Hakesley-Brown CBE, Chair, The Patients Association "A wealth of fascinating and insightful reflections on the relationship between people and their healthcare. A must-read for all: the `usual suspects and those coming new to the field, particularly those charged with taking this agenda forward in today's NHS." Sally Brearley, Faculty of Health and Social Care Sciences, Kingston University and St George's University of London

Contributors' biographical notes viii
Acknowledgements xiii
List of abbreviations
xiv
Introduction 1(4)
Section 1 What business are we really in? Managing and self-managing well-being
5(30)
1 Money matters! Personal budgets and direct payments
7(3)
Nan Carle
2 Mainstreaming a chronic disease self-management programme reflections on the NHS Expert Patients' Programme
10(3)
Jim Phillips
3 Health promotion - connecting people and place
13(7)
Angela Flux
4 Is a long-term condition a disability? Schools of thought and language
20(4)
Jan Walmsley
5 Life as an active citizen - full engagement, hard work and well-being
24(3)
Mike Hales
6 Genuine partnership
27(1)
Laurie Bryant
7 Overview: Looking for a new social contract around the NHS
28(7)
Ray Flux
Section 2 Questions of quality - not just ticking boxes
35(30)
8 A cataract journey
37(2)
Jan Walmsley
9 Using Experience-Based Co-Design to make cancer services more patient-centred
39(3)
Catherine Dale
10 How patient stories can change the commissioning culture
42(3)
Georgina Craig
11 Turning `care' into `share'
45(3)
John Worth
12 Let me tell you a story
48(3)
Tim Craft
13 Quality, leadership and moral responsibility
51(4)
Rick Stern
14 Accounting for quality - eight tips for producing reports for the public about the quality of care
55(4)
Catherine Foot
15 Overview: Quality - fantastic journey but bumpy ride?
59(6)
Celia Davies
Section 3 Governance - how can we really work together?
65(32)
16 Reminiscences of an advocate
67(2)
David Sines
17 Researching together - pooling ideas, strengths and experiences
69(4)
Rohhss Chapman
Lou Townson
18 Becoming accepted
73(3)
Kate Ansell
19 Supporting `experts by experience' - a champion idea
76(5)
Beryl Furr
20 Engaging communities - sharing the learning
81(4)
Jane Keep
21 The engagement industry - some personal reflections
85(5)
David Gilbert
22 Overview: Colliding worlds - the journey towards collaborative governance
90(7)
Celia Davies
Section 4 How can information technology work for well-being? Data, dialogues and digital media
97(34)
23 Records help us make sense of our lives
99(2)
Yvonne Bennett
24 Records access and empowered patients, 2017
101(4)
Brian Fisher
25 Learning to build a high-quality information system to support high-quality renal care
105(6)
Lawrence Goldberg
26 Embracing social technology
111(2)
Tris Taylor
27 Enlightening the next user
113(2)
Neil Bacon
28 Patients' stories - digital gifts that can change the world
115(4)
Paul Hodgkin
29 Temptations of cheap data
119(3)
Valerie Lies
30 Overview: Innovation in cultures, feelings and roles
122(9)
Mike Hales
Section 5 What kind of learning, what kind of leadership?
131(40)
31 Managers and leadership, now and then
133(2)
Alastair Mant
32 Harnessing a Hydra - managing to change the NHS
135(4)
Celia Davies
33 "Ask the patient what they want"
139(2)
Jon Willis
34 The heart and art of leadership
141(2)
Kate Hall
35 Health leadership for the 21st century - a new, holistic, co-productive endeavour
143(6)
Ed Nicol
Simon Eaton
36 Forty years of innovation in community responses to the needs of people with learning difficulties
149(4)
Simon Duffy
37 From hard to reach to within reach - the `how' of community engagement in the era of the Big Society
153(4)
Malik Gul
38 Disciplined conversation, facilitated dialogue, measured progress
157(3)
Tim Sims
Fiona Reed
39 Leadership as if people matter - the Innovateve Headteachers Programme
160(4)
Ian Cunningham
40 Overview: What kind of leadership?
164(7)
Jan Walmsley
Postscript: Better health in harder times - towards a sustainable NHS 171(6)
References 177(8)
Index 185
Celia Davies is Professor Emerita of Health Care at The Open University. She is a sociologist with a longstanding interest in ways of working in the health professions and more recently in patient and public engagement. She carried out a pioneering small study of lay members on health professional regulatory bodies in 2000, has recently audited one of its public consultation procedures for the GMC, and is now herself a lay member on the General Pharmaceutical Council. She was co-author of Citizens at the Centre: deliberative participation in healthcare decisions (Policy Press 2006 a study of the establishment of the Citizens Council at NICE.



Ray Flux has worked as an independent consultant on the interface between clinical professions and services and the people who use or work in conjunction with them, for more than 20 years, following 10 years at the Kings Fund. He works to develop partnerships and dialogue in health economies at local and regional levels, combining process design, facilitating and analytical skills in attempts to promote mutual understanding of different facets of fulfilling potential for high quality healthy lives and possible collaborations for doing this. He writes extensively for clients within his portfolio of projects. He is currently director of Civil Eyes Development Ltd and works in a variety of collaborative teams and networks.



Mike Hales addresses innovation in technical-professional domains, including healthcare (as an NHS service user), from a perspective of self-management and the bottom-up, participatory design of work practice and technology. He is author of Living thinkwork: where do labour processes come from? and Science or society: the politics of the work of scientists.



Jan Walmsley is Visiting Professor Leadership and Workforce Development at London South Bank University and Visiting Professor in the History of Learning Disability at the Open University and formerly Assistant Director at The Health Foundation. She runs her own independent research consultancy. She was a close associate of Bob Sang, with whom she developed ideas about bringing leadership development in health care and active citizenship into closer alignment. Her most recent books are Community Care in Perspective: Care, Control and Citizenship (Palgrave 2006), co-edited with John Welshman, and Towards a Good Life for People with Intellectual Disabilities (Policy Press 2010), co-authored with Kelley Johnson.