The stories we tell of our own lives and those of others help us make sense of the world and establish meaningful social connections across space and time. Pandemic stories similarly can shed light on the emotions, relationships, values, and actions that arise in times of crisis and disruption.
This book examines how COVID-19 narratives function as models of sense-making, how they connect public and private life, and what they make possible in social worlds. It emphasizes the little heard stories of those struggling with the pandemic's effects, featuring stories from across the world found in literature, social research, media, public health, and science. In doing so, it provides insight into the inequitable social burdens associated with the COVID-19 crisis.
Designed to demonstrate the richly nuanced insights that narrative inquiry can produce to understand COVID-19, Crisis, Inequity, and Legacy explores the way in which pandemic narratives are used to create the shared collective memory and cultural legacy of the pandemic. The volume expands the critical frameworks through which emerging COVID-19 narratives - experiential, literary, scientific and their hybrids - can be known, examined, and understood.
With contributions from scholars working in Africa, Asia, Australia, the Americas, the United Kingdom, and Europe, the volume furthers dialogue on the pandemic across geographical, cultural, and social diversity and considers how COVID-19 intersects with privilege and inequity in diverse social circumstances. It problematizes perspectives on the pandemic that reduce it to a global monolith or unhelpful North-South comparisons. It reframes the narrative that centered technocratic expert knowledge and a mobilizing emphasis on fear and sacrifice while discounting other values and ramifications.
This volume uses narrative to provide forms of evidence, self-reflection, and shared understanding for building more equitable and just post-COVID-19 futures.
Using narrative to provide forms of evidence, self-reflection, and shared understanding, this volume emphasizes the little heard stories of those struggling with the pandemic's effects and provides insight into the inequitable social burdens associated with the COVID-19 crisis.
1: Silvia Camporesi;Sanny Mulubale;Mark D. M. Davis: Researching
COVID-19 narratives Part
1. Power and narrative resistances 2: Hanna
Meretoja: Master and counter-narratives of COVID-19: Ali Smith's Summer,
Elizabeth Strout's Lucy by the Sea, and the complexity of lived experience 3:
Corinne Squire: Curves and numbers: Dominant and counteracting narratives of
the early COVID-19 UK pandemic 4: Monique Lewis;Eliza Melissa Govender;Eli
Skogerbø: 'Living with COVID' government narratives: South Africa, Australia,
and Norway 5: Trisha Greenhalgh;Mustafa Ozbilgin;David R. Tomlinson: How
COVID-19 spreads: Orthodox narratives, heterodox narratives, and social
dramas 6: Martha Lincoln: From 'in this together' to 'a winter of severe
illness and death': Narrating national pandemic outcomes in the United
States, 2020-2023 Part
2. Intersectionalities and temporalities 7: Floretta
A. Boonzaier;Simone Peters-Mazibuko;Ivan Munashe Leigh Katsere: Narrating
intersectionality: Migrant HIV positive women's narratives of living and
surviving in South Africa during the COVID-19 pandemic 8: Lisa
Fitzgerald;Allyson Mutch;Christopher Howard: Living 'positive' through the
COVID-19 pandemic: A qualitative longitudinal study investigating how older
people living with HIV experienced the first wave of the COVID-19 in
Australia 9: Md Abul Kalam;Shahanaj Shano;Ranjan Saha Partha: What do
COVID-19 measures mean to those on low incomes in Bangladesh?: Lived
experience, reciprocity, and inequity 10: Deborah Lupton: The
sociomaterialities of COVID life in Australia: Insights offered by narrative
case studies Part
3. Epistemic justice and reconciliation 11: Erica
Masserano: Lockdown stories: Collaborative life writing and intergenerational
relationships in the London CityLife project 12: Francisca Stutzin Donoso:
What can the lived experience of chronicity teach us about long COVID?: From
illness narratives to structural injustice in chronic disease 13: Ilana
Löwy;Jean Segata: Storytelling through long COVID: Shaping a disease with
patient testimonies in the US, UK, and Brazil Part
4. Conclusion 14: Sanny
Mulubale;Silvia Camporesi;Mark D. M. Davis: Valuing pandemic narrations:
Analytical plurality, the COVID inequity crisis, and narrative ethics
Silvia Camporesi is a bioethicist with a longstanding interest in technologies and health, and an interdisciplinary background in biotechnology, ethics, and philosophy of medicine. Camporesi is Professor of Bioethics and Sports Integrity & Ethics in the Department of Public Health and Primary Care at KU Leuven, in Belgium. She was formerly a Reader in Bioethics and Society at King's College London. Since 2017, Camporesi has been on the Editorial Board of the Journal of Bioethical Inquiry. Camporesi is also passionate about bioethics communications and writes regularly for a variety of media outlets, including AEON, the International Public Policy Observatory, and the Conversation.
Sanny Mulubale is a Commonwealth scholar, Senior Lecturer, and Programmes Convener of civic education and research method courses at the University of Zambia. He is serving as the MIET Africa health coordinator in Zambia and is researcher and supervisor of post graduate students affiliated with a number of
universities in Zambia, Zimbabwe, and the UK. He ran the UEL Global Challenge Research Fund HIV research project in Zambia in 2018-2019. He has been working as a consultant for several health-related projects funded by such institutions as the NIH, Bill and Melinda Gates Foundation, Public Health England and KwaAfrica. He has keen interest in issues around identity, citizenship, global politics, and the governmentalization of health. Mulubale is an author and reviewer who has done work for several journals such as BMC Public Health, Social Science and Medicine as well as Educational Research Association of Zambia. He has written over 25 peer reviewed publications in both local and international journals.
Mark D. M. Davis is Professor of Medical Sociology in the School of Social Sciences, Faculty of Arts at Monash University. His research focusses on the immune self, pandemics, and superbugs to help build more inclusive and effective social public health. Davis is a member of the
Association for Narrative Research and Practice where he coordinated research seminars in 2022 on the social impacts of the COVID-19 pandemic.
Lisainfo e-raamatute kohta