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E-raamat: Examination of Emerging Bioethical Issues in Biomedical Research: Proceedings of a Workshop

  • Formaat: 132 pages
  • Ilmumisaeg: 10-Aug-2020
  • Kirjastus: National Academies Press
  • Keel: eng
  • ISBN-13: 9780309676663
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  • Formaat: 132 pages
  • Ilmumisaeg: 10-Aug-2020
  • Kirjastus: National Academies Press
  • Keel: eng
  • ISBN-13: 9780309676663

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On February 26, 2020, the Board on Health Sciences Policy of the National Academies of Sciences, Engineering, and Medicine hosted a 1-day public workshop in Washington, DC, to examine current and emerging bioethical issues that might arise in the context of biomedical research and to consider research topics in bioethics that could benefit from further attention. The scope of bioethical issues in research is broad, but this workshop focused on issues related to the development and use of digital technologies, artificial intelligence, and machine learning in research and clinical practice; issues emerging as nontraditional approaches to health research become more widespread; the role of bioethics in addressing racial and structural inequalities in health; and enhancing the capacity and diversity of the bioethics workforce. This publication summarizes the presentations and discussions from the workshop.

Table of Contents



Front Matter 1 Introduction 2 Ethically Leveraging Digital Technology for Health 3 Ethical Questions Concerning Nontraditional Approaches for Data Collection and Use 4 Understanding the Impact of Inequality on Health, Disease, and Who Participates in Research 5 Bioethics Research Workforce 6 Reflecting on the Workshop and Looking to the Future References Appendix A: Workshop Agenda Appendix B: Speaker Biographical Sketches Appendix C: Statement of Task Appendix D: Registered Attendees
Acronyms And Abbreviations xiii
1 Introduction
1(10)
Current and Historical Support for Bioethics Research
3(3)
Overview of Topics Highlighted During Presentations and Discussions
6(2)
Organization of the Workshop and Proceedings
8(3)
2 Ethically Leveraging Digital Technology For Health
11(24)
Developing, Testing, and Integrating Digital Technologies into Research and Clinical Care
13(3)
Ethical Issues for Emerging Digital Technologies
16(5)
Using Artificial Intelligence and Machine Learning in Research and Clinical Care
21(3)
Ethical Issues in Machine Learning and Deep Learning Neural Networks
24(2)
Discussion
26(9)
3 Ethical Questions Concerning Nontraditional Approaches For Data Collection And Use
35(16)
Citizen and Personal Science
37(4)
Governance of Unregulated Health Research Using Mobile Devices
41(3)
Discussion
44(7)
4 Understanding The Impact Of Inequality On Health, Disease, And Who Participates In Research
51(12)
Thinking Ethically and Structurally About Race and Racism
52(2)
Federal Indian Law and Bioethics
54(3)
Discussion
57(6)
5 Bioethics Research Workforce
63(16)
Bioethics Training: A U.S. National Perspective
64(4)
Bioethics Training in Latin America and the Caribbean
68(2)
Learning from Workforce Development in Science, Technology, Engineering, and Mathematics
70(1)
Discussion
71(8)
6 Reflecting On The Workshop And Looking To The Future
79(16)
Evolving Technologies, Research Models, and Collaborations
79(4)
Vision and Scope of Bioethics
83(2)
Discussion
85(4)
Closing Remarks
89(2)
References
91(4)
APPENDIXES
A Workshop Agenda
95(6)
B Speaker Biographical Sketches
101(10)
C Statement Of Task
111(2)
D Registered Attendees
113