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E-raamat: Genetics as Social Practice: Transdisciplinary Views on Science and Culture

  • Formaat: 240 pages
  • Ilmumisaeg: 22-Apr-2016
  • Kirjastus: Routledge
  • Keel: eng
  • ISBN-13: 9781317129431
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  • Formaat: 240 pages
  • Ilmumisaeg: 22-Apr-2016
  • Kirjastus: Routledge
  • Keel: eng
  • ISBN-13: 9781317129431

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Recent debate about the ethical and regulatory dimensions of developments in genetics has sidelined societal and cultural aspects, which arguably are indispensable for a nuanced understanding of the complexities of the topic. Regulatory and ethical debates benefit from taking seriously this ’third dimension’ of culture, which often determines the configurations and limits of the space within which scientific, ethical and legal debate can take place. To fill this gap, this volume brings together contributions exploring the mutual relationships between genetics, markets, societies and identities in genetics and genomics. It draws upon the recent transdisciplinary debate on how socio-cultural factors influence understandings of ’genetics2.0' and shows how individual and collective identities are challenged or reinforced by cultural meanings and practices of genetics. This book will become a standard reference for everyone seeking to make sense of the controversies and shifts in the field of genetics in the second decade of the twenty-first century.

Arvustused

This is a timely and important publication that fills a gap in research and teaching. The editors have done a great job putting together a range of thoughtful analyses on the ethical, social and personal challenges that follow when genetics leaves the lab and the headlines and becomes an everyday issue for ordinary people. I will be happy to recommend this book to my students. Lene Koch, University of Copenhagen, Denmark As technology produces an unprecedented level of genetic information, this book successfully analyses the changing social and ethical implications and challenges for individuals and societies. This is a clear and essential reference for both academics and lay readers that explores the dramatic present and future impact of genetics from a social, political and scientific perspective. Tim Spector, Kings College London, UK

List of Tables and Figures
vii
Notes on Contributors ix
Foreword xiii
Johannes Zschocke
Acknowledgements xvi
1 Geneticising Life: A Collective Endeavour and its Challenges
1(28)
Barbara Prainsack
Silke Schicktanz
Gabriele Werner-Felmayer
PART I CREATING IDENTITIES
2 Will Personal Genomic Information Transform One's Self?
29(14)
Jennifer R. Fishman
Michelle L. McGowan
3 The Changing Self: Philosophical Concepts of Self and Personal Identity in a Post-clinical Age of Genetics
43(16)
Josef Quitterer
4 Ancestry Testing and DNA: Uses, Limits -- and Caveat Emptor
59(14)
Troy Duster
5 Other Stories: Artistic Explorations of Genealogy and Identity
73(22)
Priska Gisler
Mo Diener
Luzia Hurzeler
PART II SHARING KNOWLEDGE
6 The Latent Figure Protocol -- A Photo-essay
95(12)
Paul Vanouse
7 Consequences of Sequences, Codes and Messages: Artistic and Scientific Readings of Chromosomes in an Era of Consumerism
107(22)
Gabriele Werner-Felmayer
8 The Ethics of Patenting in Genetics: A Second Enclosure of the Commons?
129(18)
Sigrid Sterckx
Julian Cockbain
PART III PARTICIPATING IN THE SOCIAL LABORATORY
9 Understanding Participation: The 'Citizen Science' of Genetics
147(18)
Barbara Prainsack
10 LabouringMe, LabouringUs
165(16)
Gisli Palsson
11 Making Responsible Life Plans: Cultural Differences in Lay Attitudes toward Predictive Genetic Testing for Late-Onset Diseases
181(18)
Aviad E. Raz
Nitzan Rimon-Zarfaty
Julia Inthorn
Silke Schicktanz
12 Genetic Responsibility Revisited: Moral and Cultural Implications of Genetic Prediction of Alzheimer's Disease
199(20)
Silke Schicktanz
Friederike Kogel
Index 219
Barbara Prainsack is Reader in Sociology in the Department of Social Science, Health and Medicine at King's College London, UK.

Silke Schicktanz is Professor of Culture and Ethics of Biomedicine at the University Medical Centre Göttingen, Germany.

Gabriele Werner-Felmayer is University Professor of Medical Biochemistry at the Medical University of Innsbruck, Austria.