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E-raamat: Handbook on Ageing with Disability

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  • Formaat: 442 pages
  • Ilmumisaeg: 10-Mar-2021
  • Kirjastus: Routledge
  • Keel: eng
  • ISBN-13: 9780429878374
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  • Formaat: 442 pages
  • Ilmumisaeg: 10-Mar-2021
  • Kirjastus: Routledge
  • Keel: eng
  • ISBN-13: 9780429878374

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Mainstream gerontological scholarship has taken little heed of people ageing with disability, and they have also been largely overlooked by both disability and ageing policies and service systems.

The Handbook on Ageing with Disability is the first to pull together knowledge about the experience of ageing with disability. It provides a broad look at scholarship in this developing field and across different groups of people with disability in order to form a better understanding of commonalities across groups and identify unique facets of ageing within specific groups. Drawing from academic, personal, and clinical perspectives, the chapters address topics stemming from how the ageing with disability experience is framed, the heterogeneity of the population ageing with disability and the disability experience, issues of social exclusion, health and wellness, frailty, later life, and policy contexts for ageing with disability in various countries.

Responding to the need to increase access to knowledge in this field, the Handbook provides guideposts for researchers, practitioners, and policy makers about what matters in providing services, developing programmes, and implementing policies that support persons ageing with long-term disabilities and their families.

Arvustused

The Handbook on Ageing with Disability is a long-awaited gem of information, research and insights into an area growing in importance but too long ignored. The co-authors are pioneers in this field and they have brought together an impressive international caste of experts. The myriad dimensions and the nuances of aging with a disability, whether intellectual, cognitive, physical, visual, or chronic are brought together in a masterful collection of prescient chapters. This Handbook is destined to be the "bible" for all of us aging into and with various forms of limitations and disabilities and seeking the latest analysis, data, trends and understanding of this complex yet personal concern.

Fernando M. Torres-Gil, UCLA Professor of Social Welfare and Public Policy

This Handbook fills a major gap in the knowledge base required to bridge the fields of aging with disability, certainly one of the major challenges for humankind in the XXI Century. The range of topics covered and populations discussed demonstrates the heterogeneity of the aging with disability population and the need for greater attention to common issues in these two areas of research, support and care. This book brilliantly culminates the extensive work the editors have led on this topic over the last 20 years.

Luis Salvador-Carulla, Head of the Centre for Mental Health Research at the Australian National University

List of Figures
xi
List of Tables
xiii
List of Contributors
xiv
Acknowledgments xxi
Preface xxii
PART I Framing the Ageing with Disability Experience
1(80)
1 Understanding Ageing with Disability
3(11)
Michelle Putnam
Caitlin E. Coyle
Lydia P. Ogden
Christine Bigby
2 Rethinking the Concept of Successful Ageing: A Disability Studies Approach
14(9)
Tove Harnett
Annika Taghizadeh Larsson
Hakan Jonson
3 Ageing with Lifelong Disability: Individual Meanings and Experiences Over Time
23(9)
Lieke van Heutnen
4 Integrating Critical Disability Studies and Critical Gerontology to Explore the Complexities of Ageing with Disabilities
32(12)
Hailee M. Yoshizaki-Gibbons
5 Social and Environmental Determinants of the Health of People with Disabilities
44(13)
Eric Emerson
Zoe Aitken
Hannah Badland
Nicola Fortune
Celia Green
Jerome N. Rachele
6 Reducing the Shared Burden of Chronic Conditions Among Persons Ageing with Disability and Older Adults in the United States Through Bridging Ageing and Disability
57(12)
Margaret L. Campbell
Michelle Putnam
7 Segmenting Ageing and Disability Policy: Ethical Concerns
69(12)
Jerome Bickenbach
PART II Diverse Experiences of Ageing with Disability
81(78)
8 Understanding the Experience of Growing Older with Cerebral Palsy
83(14)
Laura R. Moll
Cheryl A. Cott
9 Ageing with Deafblindness
97(11)
Peter Simcock
Jill Manthorpe
10 Ageing, Serious Mental Illness, and Perceptions of Self Over the Life Course
108(15)
Lydia P. Ogden
11 Ageing and Brain Injury Long-Term Outcomes in Adults
123(15)
Angela Colantonio
Melissa Biscardi
12 Ageing with Multiple Sclerosis
138(10)
Marcia Finlayson
Michelle Ploughman
Julie Petrin
Roshanth Rajachandrakumar
13 Ageing when Being Autistic
148(11)
Hilde M. Geurts
Rebecca Charlton
Lauren Bishop
PART III Forwarding Social Inclusion
159(58)
14 Community Participation and Engagement for Persons Ageing with Physical Disability
161(8)
Rachel Heeb
Courtney Weber
Jessica Dashner
Kerri Morgan
15 Design for One is Design for All: The Past, Present, and Future of Universal Design as a Strategy for Ageing-in-Place with Disability
169(17)
Jon A. Sanford
Elena T. Remillard
16 Support for Decision-Making as People Age With a Cognitive Impairment
186(10)
Terry Carney
Shih-Ning Then
17 Internalised Ageism and the User Gaze in Eldercare: Identifying New Horizons of Possibilities Through the use of a Disability Lens
196(9)
Hakan Jbnson
Annika Taghizadeh Larsson
Tove Harnett
18 Creating Age and Disability Friendly Communities to Support Healthy and Meaningful Ageing
205(12)
Friedrich Dieckmann
Christiane Rohleder
PART IV Intellectual Disability as a Case Example
217(104)
19 The Emergence of Ageing with Long-Term Disability Populations
219(10)
Philip McCallion
Lisa Ferretti
Mary McCarron
20 Health and Wellness Among Persons Ageing with Intellectual Disability
229(11)
Darren McCausland
Philip McCallion
Mary McCarron
21 Retirement for People with Intellectual Disability: Policy, Pitfalls, and Promising Practices
240(14)
Christine Bigby
22 Family Caregiving for Adults Ageing with Intellectual and Developmental Disabilities
254(8)
Tamar Heller
Sumithra Murthy
Catherine Keiling Arnold
23 Ageing with Intellectual Disability In Sweden: Participation and Self Determination
262(11)
Mia Jormfeldt
Magnus Tideman
24 Towards Untangling the Ageing Riddle in People with Intellectual Disabilities: An Overview of Research on Frailty and Its Consequences
273(14)
Josje D. Schoufour
Dederieke Maes-Festen
Alyt Oppewal
Heleen M. Evenhuis
25 How to Avoid Early Frailty in People with Intellectual Disabilities?
287(13)
Heleen M. Evenhuis
Josje D. Schoufour
Alyt Oppewal
Dederieke Maes-Festen
26 Dementia Care for Persons Ageing with Intellectual Disability: Developing Non-Pharmacological Strategies for Support
300(10)
Karen Watchman
Kate Mattheys
27 End-of-Life Care for Adults With Intellectual Disabilities
310(11)
Teresa Moro
Jacqueline McGinley
PART V Policies to Support Persons Ageing with Disability
321(78)
28 Responding to Changing Workforce Realities: One Profession's Experience
323(14)
Fintan Sheerin
Philip McCallion
Mary McCarron
29 Ageing in Place in Group Homes: An Australian Context
337(13)
Tal Araten-Bergman
Christine Bigby
30 Support, Service Policies, and Programs For Persons Ageing with Disabilities in Korea
350(11)
Kyung Mee Kim
Seung Hyun Roh
31 Trends in Integrating Long-Term Services and Supports in the United States
361(11)
Michelle Putnam
Caitlin E. Coyle
32 Access to Assistive Technology in Canada
372(12)
Rosalie H. Wang
Michael G. Wilson
33 Ageing with Disability: Using Financial Mechanisms to Facilitate Intersectoral Collaboration
384(8)
David McDaid
A-La Park
34 Enabling a Good Old Age for People Ageing with Disability: Reflections on Progress
392(7)
Christine Bigby
Michelle Putnam
Glossary 399(5)
Index 404
Michelle Putnam is a Professor at the School of Social Work at Simmons University in Boston, Massachusetts. She has studied the experience of ageing with disability, focusing on social care and public policy, for over 20 years. Her work has forwarded efforts to bridge the fields of ageing and disability.

Christine Bigby is a Professor of Social Work and Director of the multidisciplinary Living with Disability Research Centre at La Trobe University, Melbourne, Australia. Her research is focused on building the evidence base for programmes and practice that support the social inclusion of people with intellectual disabilities.