E-raamat: Living With A Desmoid Tumor

This story is about Beverley Jaworski, my wife. She passed away on January 20 at 2:30 a.m. She was a good woman, a good person, with a soft and loving heart and a beautiful soul. Her days were made up of struggling with the pain that her body had been plagued with most of her life. She had placed herself on the donor list in the hope that the discovery of her desmoid tumors or any of her other ailments would find a cure. No family history recorded with these diseases. Her medical tragedies started at an early age when she was a teenager. Her first tumor appeared in her spinal column. It took ten years for the big discovery of a massive layout of desmoid tumors in all her muscles on the front area of her body. Her surgery to remove her muscle mass and replace it with a sheet of Marlex took twelve hours.Her wishes were that this book would be an informative biography of a person who had undergone surgeries necessary or not necessary. To help in being educated in asking the correct questions before allowing the doctors to perform their decisions on what you should allow them to do with your body. Not all doctors were aware of what was needed to keep her healthy. Surgeons like to perform surgery. That is how they learn to become better with new and upcoming patients. In her case, she had over twenty-five doctors who had seen her over the years, and only three knew what they were doing. She trusted all of them, but as her own words now describe, a wrong or late decision eventually cost her her life. You need to be informed, so ask questions.