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E-raamat: Multiple Sclerosis: A Guide for Families, Third Edition

  • Formaat: 222 pages
  • Ilmumisaeg: 01-Sep-2005
  • Kirjastus: Demos Medical Publishing
  • Keel: eng
  • ISBN-13: 9781934559307
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  • Formaat: 222 pages
  • Ilmumisaeg: 01-Sep-2005
  • Kirjastus: Demos Medical Publishing
  • Keel: eng
  • ISBN-13: 9781934559307

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Provides guidance to the families of individuals suffering from multiple sclerosis on such topics as sexuality, emotional and cognitive issues, and financial considerations.

Kalb, director of the Professional Resource Center at the National Multiple Sclerosis Society, provides detailed, commonsense advice, written in plain language, for families of individuals with MS. Emphasis is on striking a balance between the interests and needs of all family members and the limitations imposed by MS. Some of the areas discussed include sexuality, emotional and cognitive issues, and financial and legal considerations for families living with MS. For this third edition, the author adds new chapters on parenting a child with MS and planning wisely for future care. Annotation ©2005 Book News, Inc., Portland, OR (booknews.com)

Families experiencing multiple sclerosis often find themselves in uncharted territory. Prior patterns of interacting with each other may no longer work; roles often shift with dramatic emotional impact; guilt, anger, sadness, and a sense of burden may create a barrier to intimacy, joy, growth, and family unity. There are ways out of this debilitating situation, and many families have restored their balance, humor, productivity and family solidarity. Multiple Sclerosis: A Guide for Families can lead the way for your family to strengthen its coping skills and to receive targeted information about the disease and its ramifications. This complete yet highly readable guide for families living with multiple sclerosis addresses these issues and more.


Because most people who are diagnosed with MS are between the ages of 15-55 years, the disease has a significant impact, not only on the individual with the disease, but also on the family members and loved ones whose lives are interwoven with them.

Families experiencing multiple sclerosis often find themselves in uncharted territory. Prior patterns of interacting with each other may no longer work roles often shift with dramatic emotional impact guilt, anger, sadness, and a sense of burden may create a barrier to intimacy, joy, growth, and family unity. There are ways out of this debilitating situation, and many families have restored their balance, humor, productivity and family solidarity. Multiple Sclerosis: A Guide for Families can lead the way for your family to strengthen its coping skills and to receive targeted information about the disease and its ramifications.

This complete yet highly readable guide for families living with multiple sclerosis addresses these issues and more. Families must learn how to strike a reasonable balance between the interests and needs of its members, and to accommodate the limitations imposed by MS without allowing them to impact every aspect of family life. This is easier said than done, and extensive discussions consider how the basic goals of living with this chronic disease can be met."

Arvustused

...exceptionally reader-friendly...a good resource for professionals as well as lay readers...Each chapter provides excellent additional readings, and there is an appendix of recommended resources. I highly recommend this invaluable guide. -- Inside MS""...This practical, complete, and highly readable guide is must reading for anyone confronting this debilitating illness personally or in a loved one."" -- The Bookwatch

""...a complete, highly readable guide that addresses all of the issues multiple sclerosis brings to the family....essential, critically important reading for anyone with MS, their families and their friends."" -- The Midwest Book Review

""...will help MS sufferers and their loved ones prepare for the impact of MS, keep the lines of communication open, devise coping strategies, and give MS no more space in the household than it needs.""-- PA Today

"Foreword by Nancy Holland
When MS Joins the Family
Emotional and Cognitive Issues
The Family's Relationship with the Physician and the Healthcare Team
Sexuality and Intimacy
Fertility, Pregnancy, and Childbirth
Parenting with MS
Parenting a Child or Teenager with MS
Adults with MS and Their Parents
The Care-giving Relationship
Planning Wisely for Possible Care Needs
General Health and Well-Being
Life Planning: Financial and Legal Considerations
Supportive Educational Resources for the Family
Appendix A: Additional Readings
Appendix B: Recommended Resources
Appendix C: Professional Biographies of the Authors
Index"
Dr. Rosalind Kalb, a clinical psychologist, is Director of the Professional Resource Center at the National Multiple Sclerosis Society in New York, where she develops and provides educational and consultation services to clinicians who care for people with MS. In her private clinical practice, she specializes in the needs of individuals and families living with chronic illness and disability. She serves on the editorial board of several publications, including the International Journal of MS Care.