| Foreword |
|
ix | |
| Preface |
|
xi | |
| Acknowledgments |
|
xiii | |
| Editors |
|
xv | |
| Contributors |
|
xvii | |
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|
xxxix | |
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Part I Normal Growth and Development of Children |
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1 Normal Growth and Development |
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3 | (12) |
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2 Cognitive and Psychosocial Development of Children |
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15 | (16) |
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Part II The Roles of the Life Care Plan Team |
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3 The Role of the Pediatric Care Manager in Life Care Planning |
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31 | (18) |
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4 The Role of the Life Care Planner in Pediatric Life Care Planning |
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49 | (42) |
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5 The Role of the Pediatric Physiatrist in Life Care Planning |
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91 | (6) |
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6 The Role of the Pediatric Neuropsychologist in Life Care Planning |
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97 | (26) |
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7 The Role of the Pediatric Neurologist in Life Care Planning |
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123 | (10) |
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8 The Role of the Child Clinical Psychologist in Life Care Planning |
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133 | (14) |
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9 The Role of the Developmental Pediatrician in Life Care Planning |
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147 | (10) |
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10 The Role of the Occupational Therapist in Life Care Planning |
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157 | (12) |
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11 The Role of the Physical Therapist in Life Care Planning |
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169 | (20) |
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12 The Role of Speech-Language Pathology in Life Care Planning |
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189 | (86) |
|
Carolyn Wiles (Watkins) Higdon |
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13 The Role of the Vocational Rehabilitation Consultant in Life Care Planning |
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275 | (44) |
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14 The Role of the Special Needs Trust Administrator in Life Care Planning |
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319 | (12) |
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Part III Chronic Conditions and Disability States |
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15 Life Care Planning for the Child with a Spinal Cord Injury |
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331 | (46) |
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16 Life Care Planning for Children with Neurodevelopmental Disabilities |
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377 | (58) |
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17 Life Care Planning for the Child with Asthma and Other Chronic Respiratory Conditions |
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435 | (30) |
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18 Life Care Planning for the Child with Acquired Brain Injury |
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465 | (38) |
|
Sherilyn Whateley Driscoll |
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19 Life Care Planning for Children with Diabetes |
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503 | (14) |
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20 Life Care Planning for the Child with a Brachial Plexus Injury |
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517 | (22) |
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21 Life Care Planning for the Pediatric Burn Patient |
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539 | (26) |
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22 Life Care Planning for Children and Adolescents with Mental Health Disorders |
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565 | (26) |
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23 Life Care Planning for the Child with an Amputation |
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591 | (30) |
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24 Life Care Planning for Pediatric Solid Organ Transplantation |
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621 | (58) |
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25 Life Care Planning for Children with Genetic Disorders |
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679 | (18) |
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26 Life Care Planning for the Visually Impaired Child |
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697 | (18) |
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27 Life Care Planning for Children with Hearing Impairments |
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715 | (52) |
|
Carolyn Wiles (Watkins) Higdon |
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28 Bilirubin Encephalopathy/Kernicterus Implications for Life Care Planning |
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767 | (24) |
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29 Life Care Planning for the Child with an Artificial Airway or Requiring Long-Term Mechanical Ventilatory Assistance |
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791 | (14) |
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Part IV Forensic Considerations |
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30 Use of the Life Care Plan in a Lawsuit Involving a Child |
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805 | (14) |
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31 Life Care Plans from a Legal Defense Perspective |
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819 | (20) |
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32 Use of the Life Care Planning Expert in Legal Cases |
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839 | (6) |
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33 Establishing Foundations for Life Care Plan Development |
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845 | (10) |
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855 | (32) |
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35 Special Education Law and the Pediatric Patient |
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887 | (20) |
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36 Essential Concepts in Pediatric Assistive Technology |
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907 | (18) |
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37 The Role of the Medical Home in Life Care Planning |
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925 | (14) |
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38 Considerations for Medical Equipment in a Pediatric Life Care Plan |
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939 | (20) |
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39 Ethical and Moral Issues in Caring for Children with Special Needs |
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959 | (16) |
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40 Understanding Medicaid and Other Funding Sources |
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975 | (8) |
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41 Continuing Life with Noah: A Mother's Perspective |
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|
983 | |
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| Index |
|
993 | |
| Introduction |
|
3 | (28) |
|
Growth Disorders in Children |
|
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4 | (1) |
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Theories of Child Development |
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4 | (2) |
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Normal Development in Infancy and Early Childhood |
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6 | (6) |
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6 | (2) |
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8 | (3) |
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Self-Help and Socialization Skills |
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11 | (1) |
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12 | (1) |
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Normal Development in the School-Age Child |
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12 | (1) |
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Practical Applications of Child Development in Clinical Practice |
|
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13 | (15) |
| Conclusion |
|
14 | (1) |
| Acknowledgments |
|
14 | (1) |
| References |
|
14 | (33) |
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28 | (5) |
| Introduction |
|
31 | (18) |
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33 | (1) |
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34 | (1) |
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35 | (1) |
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35 | (1) |
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36 | (1) |
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37 | (3) |
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Home Nursing/Attendant Care |
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40 | (2) |
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42 | (1) |
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43 | (1) |
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44 | (1) |
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The Life Care Planner and the Pediatric Care Manager |
|
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44 | (7) |
| Summary |
|
47 | (1) |
| References |
|
47 | (22) |
| Introduction |
|
49 | (49) |
|
History of Life Care Planning |
|
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51 | (5) |
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Life Care Planning Methodology |
|
|
56 | (9) |
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Unique Considerations of Pediatric Life Care Plans |
|
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65 | (30) |
|
Family Response to Development and Transitions |
|
|
65 | (1) |
|
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|
66 | (29) |
| Conclusions |
|
69 | (1) |
| Appendix A IALCP Standards of Practice (2006)---Standards of Practice for Life Care Planners |
|
70 | (6) |
| Appendix B Bibliography of Selected Life Care Planning Publications |
|
76 | (5) |
| Appendix C Life Care Planning Resources |
|
81 | (3) |
| Appendix D The Basic Tenets of Life Care Planning |
|
84 | (3) |
| References |
|
87 | (32) |
|
|
|
95 | (3) |
| Introduction |
|
98 | (25) |
|
Definition of a Pediatric Neuropsychologist |
|
|
98 | (3) |
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The Interface between Neuropsychologists and Life Care Planners |
|
|
101 | (2) |
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The Pediatric Neuropsychologist as an Evaluator |
|
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103 | (10) |
|
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104 | (1) |
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104 | (1) |
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105 | (1) |
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Neuropsychological Testing |
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105 | (1) |
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Comparison to Premorbid Functioning |
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105 | (1) |
|
|
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105 | (3) |
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Recommendations and Treatment Planning |
|
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108 | (4) |
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112 | (1) |
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The Pediatric Neuropsychologist as a Treatment Provider |
|
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113 | (2) |
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113 | (1) |
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113 | (1) |
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Patient--Family Psychoeducation |
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114 | (1) |
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114 | (1) |
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Behavioral Family Interventions |
|
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114 | (1) |
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114 | (1) |
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114 | (1) |
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The Pediatric Neuropsychologist as a Consultant |
|
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115 | (1) |
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Consultation with the School System |
|
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115 | (2) |
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Consultation with Vocational Rehabilitation Counselors |
|
|
117 | (7) |
| Summary and Conclusions |
|
119 | (1) |
| Acknowledgment |
|
120 | (1) |
| References |
|
120 | (11) |
| Introduction |
|
123 | (11) |
|
Origins of the Discipline of Pediatric Neurology |
|
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124 | (1) |
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The Process of Becoming a Pediatric Neurologist |
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125 | (1) |
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The Breadth and Depth of Pediatric Neurology |
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126 | (1) |
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Medical Issues Confronted by a Pediatric Neurologist |
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127 | (1) |
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The Role of Clinical Practice Guidelines in Pediatric Neurology and in Life Care Planning |
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128 | (2) |
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Ethical Issues Confronted by the Pediatric Neurologist |
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130 | (1) |
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The Role of the Pediatric Neurologist |
|
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130 | (8) |
| References |
|
131 | (13) |
| Introduction |
|
134 | (1) |
| Evaluation Strategies |
|
134 | (2) |
| Developmental Stages |
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136 | (11) |
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Oral Sensory (Birth to 18 Months)/Central Issue: Trust vs. Mistrust |
|
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136 | (2) |
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138 | (1) |
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138 | (1) |
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Muscular--Anal (18 Months to 3 Years)/Central Issue: Autonomy vs. Shame and Doubt |
|
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139 | (1) |
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139 | (1) |
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140 | (1) |
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Locomotor (3--6 Years)/Central Issue: Initiative vs. Guilt |
|
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140 | (1) |
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140 | (2) |
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141 | (1) |
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Latency (6--12 Years)/Central Issue: Industry vs. Inferiority |
|
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141 | (1) |
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142 | (1) |
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142 | (1) |
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Adolescence (12--18 Years)/Central Issue: Identify vs. Role Confusion |
|
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142 | (1) |
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143 | (5) |
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143 | (1) |
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Young Adulthood, Middle Adulthood, and Maturity |
|
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144 | (4) |
| Concluding Remarks |
|
144 | (1) |
| References |
|
144 | (11) |
| Introduction |
|
147 | (10) |
|
Training for Developmental Pediatricians |
|
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148 | (1) |
|
Transdisciplinary Functions |
|
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148 | (1) |
|
Spectrum of Developmental Disabilities |
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149 | (1) |
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Continuum of Developmental Disabilities |
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150 | (1) |
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Diagnosis and Management of Associated Disabilities |
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151 | (1) |
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Developmental Pediatrics Assessment |
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151 | (2) |
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153 | (7) |
| Summary and Conclusion |
|
155 | (1) |
| Acknowledgments |
|
155 | (1) |
| References |
|
155 | (11) |
| Introduction |
|
157 | (13) |
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160 | (2) |
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161 | (1) |
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162 | (1) |
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162 | (1) |
|
Sensory Integration Disorders |
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163 | (2) |
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164 | (1) |
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165 | (5) |
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165 | (5) |
| Conclusion |
|
166 | (1) |
| References |
|
166 | (19) |
| Introduction |
|
170 | (20) |
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170 | (1) |
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Common Diagnoses and Associated Problems |
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170 | (6) |
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170 | (1) |
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171 | (1) |
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171 | (1) |
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172 | (1) |
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173 | (1) |
|
Arthrogryposis Multiplex Congenita |
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173 | (1) |
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173 | (1) |
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174 | (1) |
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175 | (1) |
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175 | (1) |
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176 | (2) |
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178 | (1) |
|
Therapeutic Interventions |
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178 | (3) |
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178 | (1) |
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179 | (1) |
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179 | (1) |
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179 | (2) |
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180 | (1) |
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180 | (1) |
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180 | (1) |
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180 | (1) |
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181 | (1) |
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181 | (1) |
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181 | (1) |
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181 | (10) |
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182 | (1) |
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182 | (2) |
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184 | (1) |
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184 | (1) |
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184 | (7) |
| Case Study |
|
185 | (1) |
| References |
|
186 | (61) |
| Introduction |
|
190 | (86) |
|
Speech-Language Pathologists (and Audiologists) |
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191 | (1) |
|
What Do Speech-Language Pathologists Do? |
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191 | (3) |
|
Scope of Practice for Speech-Language Pathology |
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194 | (1) |
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195 | (4) |
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199 | (1) |
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Normal Speech, Language, Hearing Development |
|
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199 | (1) |
|
Speech-Language Pathology and Swallowing |
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200 | (29) |
|
Speech-Language Pathology Assessment |
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200 | (1) |
|
General Considerations for Assessment |
|
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200 | (1) |
|
Children with Specific Receptive and Expressive Language Disorders |
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201 | (6) |
|
Children with Intellectual Disabilities |
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207 | (2) |
|
Children with Autism and Pervasive Developmental Disorders |
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209 | (2) |
|
Children with Craniofacial Anomalies |
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211 | (2) |
|
Children with Neurogenic Disorders of Speech |
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213 | (1) |
|
Children with Phonatory Disorders |
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214 | (3) |
|
Children with Acquired Brain Injury |
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217 | (6) |
|
Incidence of Pediatric Brain Injury (Right--Left Hemisphere vs. Dominant/Nondominant Hemisphere) |
|
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218 | (1) |
|
Cognitive-Communication Disorders Associated with Traumatic and Acquired Brain Injury |
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219 | (4) |
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Children with Fluency and Stuttering Disorders |
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223 | (2) |
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Children at Risk Due to Environmental Factors |
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225 | (1) |
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Factors That Affect Children's Language Development |
|
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226 | (1) |
|
Children with Swallowing (Oral and Pharyngeal Dysphagia) Disorders |
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226 | (3) |
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What Do Speech-Language Pathologists Do When Working with People with Tracheostomies or Ventilators? |
|
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229 | (1) |
|
Children Who Need Augmentative and Alternative Communication |
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229 | (14) |
|
AAC Assessment Principles |
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234 | (1) |
|
AAC Communicative Disorders Assessment Outline |
|
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235 | (1) |
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236 | (3) |
|
Augmentative Communication Case History Information |
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239 | (1) |
|
AAC Academic and Literacy Checklist |
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|
240 | (3) |
|
Billing and Coding for AAC Devices and Services |
|
|
243 | (2) |
|
Service Delivery Models for Infants, Toddlers, and Preschool Children |
|
|
245 | (1) |
|
Communication Bill of Rights |
|
|
246 | (30) |
| Glossary |
|
247 | (7) |
| Appendix A |
|
254 | (2) |
| Appendix B |
|
256 | (1) |
| Appendix C |
|
257 | (15) |
| References |
|
272 | (1) |
| Other Sources |
|
273 | (40) |
| Introduction |
|
276 | (44) |
|
Historical Roots of Vocational Rehabilitation Service Delivery |
|
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276 | (3) |
|
Rehabilitation Counselor as a Vocational Rehabilitation Consultant |
|
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279 | (1) |
|
Who Is a Qualified Vocational Rehabilitation Consultant? |
|
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280 | (2) |
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282 | (3) |
|
Pediatric Case Management |
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285 | (3) |
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288 | (2) |
|
Pediatric Health-Care Team |
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290 | (1) |
|
Collaborating with Early Interventionists and School Personnel as Part of the Team |
|
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291 | (3) |
|
Transition Planning for the Adolescent/Young Adult |
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294 | (6) |
|
Loss of Earnings Capacity |
|
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300 | (2) |
|
Impact of Education and Other Demographic Factors |
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302 | (1) |
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Establishing a Foundation |
|
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303 | (1) |
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Forming a Vocational Opinion |
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303 | (3) |
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306 | (5) |
|
Parental/Family Occupations |
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308 | (1) |
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308 | (1) |
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308 | (1) |
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309 | (1) |
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309 | (1) |
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309 | (1) |
|
Access to the Labor Market |
|
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309 | (1) |
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310 | (1) |
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310 | (1) |
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310 | (1) |
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310 | (1) |
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Labor Force Participation |
|
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311 | (1) |
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311 | (1) |
|
Example Online and Computer Resources |
|
|
311 | (9) |
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311 | (1) |
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312 | (1) |
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312 | (1) |
|
Computer Software Applications |
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|
313 | (7) |
| Print Resources |
|
313 | (1) |
| Acknowledgments |
|
314 | (1) |
| References |
|
314 | (14) |
| Introduction |
|
320 | (12) |
|
What Is a Special Needs Trust? |
|
|
320 | (1) |
|
Distributions from a Special Needs Trust |
|
|
320 | (4) |
|
SSI, SSDI, SSDAC, Medicaid, and Medicare |
|
|
321 | (1) |
|
Medicaid Home- and Community-Based Care Service Waivers |
|
|
321 | (1) |
|
Discretionary Language in the Trust Document |
|
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322 | (1) |
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323 | (1) |
|
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323 | (1) |
|
Potentially Prohibited Distributions |
|
|
324 | (1) |
|
Other Aspects of Special Needs Trust Administration |
|
|
324 | (2) |
|
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324 | (1) |
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324 | (1) |
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325 | (1) |
|
Trust-Owned Vehicles or Real Estate |
|
|
325 | (1) |
|
The Trust Administrator as a Quasi-Social Worker |
|
|
325 | (1) |
|
Trust Administrator Considerations |
|
|
326 | (1) |
|
How the Trust Administrator Works with a Life Care Planner |
|
|
326 | (6) |
|
|
|
326 | (1) |
|
|
|
327 | (1) |
|
Revaluation of Beneficiary's Needs Post-Accident/Injury |
|
|
327 | |
|
|
|
320 | (12) |
| Conclusion |
|
328 | (1) |
| References |
|
328 | (21) |
| Introduction |
|
332 | (46) |
|
Prevalence of Spinal Cord Injury |
|
|
332 | (2) |
|
Spinal Cord Injury without Radiographic Abnormalities |
|
|
334 | (1) |
|
Neonatal Spinal Cord Injury |
|
|
334 | (1) |
|
Myelodysplasia (Spina Bifida) |
|
|
335 | (1) |
|
|
|
336 | (1) |
|
|
|
336 | (1) |
|
|
|
336 | (7) |
|
|
|
336 | (1) |
|
Cardiovascular Orthostatic Hypotension |
|
|
337 | (1) |
|
|
|
337 | (1) |
|
|
|
337 | (1) |
|
|
|
337 | (1) |
|
|
|
337 | (1) |
|
Pulmonary Complications and Mechanical Ventilation |
|
|
338 | (2) |
|
Gastrointestinal Tract Complications |
|
|
340 | (1) |
|
|
|
340 | (1) |
|
|
|
340 | (1) |
|
|
|
340 | (1) |
|
Hip Subluxation and Dislocation |
|
|
341 | (1) |
|
|
|
341 | (1) |
|
|
|
342 | (1) |
|
|
|
343 | (1) |
|
Developmental Approach to Pediatric Rehabilitation |
|
|
343 | (2) |
|
|
|
345 | (1) |
|
|
|
345 | (1) |
|
|
|
346 | (1) |
|
|
|
346 | (1) |
|
Long-Term Prophylactic Medical Care |
|
|
347 | (1) |
|
|
|
347 | (1) |
|
|
|
348 | (1) |
|
|
|
348 | (31) |
| Conclusion |
|
349 | (1) |
| Case Study |
|
349 | (24) |
| Acknowledgment |
|
373 | (1) |
| Case Resources |
|
373 | (1) |
| References |
|
374 | (35) |
| Introduction |
|
378 | (58) |
|
|
|
379 | (13) |
|
Associated Neurological and Medical Complications and Comorbidities |
|
|
380 | (1) |
|
|
|
381 | (1) |
|
|
|
382 | (1) |
|
Partial or Focal Seizures |
|
|
382 | (1) |
|
Impaired Oromotor Control (Feeding) |
|
|
382 | (1) |
|
Gastroesophageal Reflux Disease and Other Feeding Disorders |
|
|
382 | (1) |
|
|
|
383 | (1) |
|
|
|
384 | (1) |
|
Multidisciplinary Treatment of Cerebral Palsy |
|
|
384 | (1) |
|
Neurology/Physiatry/Neurosurgery |
|
|
385 | (3) |
|
|
|
388 | (1) |
|
Neuropsychology and Psychology |
|
|
388 | (1) |
|
Physical and Occupational Therapy |
|
|
389 | (1) |
|
|
|
389 | (2) |
|
|
|
389 | (1) |
|
|
|
389 | (2) |
|
Special Issues Encountered by the Treatment Team |
|
|
391 | (1) |
|
|
|
391 | (1) |
|
|
|
392 | (44) |
|
Associated Neurological and Medical Complications and Comorbidities |
|
|
393 | (6) |
|
|
|
393 | (1) |
|
Chiari Type II Malformation |
|
|
393 | (5) |
|
|
|
398 | (1) |
|
|
|
399 | (1) |
|
|
|
399 | (2) |
|
Pressure Sores, Decubiti, and Bed Sores |
|
|
399 | (1) |
|
Carpal Tunnel Syndrome and de Quervain's Tenosynovitis |
|
|
399 | (1) |
|
|
|
400 | (1) |
|
Multidisciplinary Treatment of Spina Bifida |
|
|
400 | (1) |
|
|
|
401 | (1) |
|
|
|
402 | (1) |
|
|
|
402 | (2) |
|
|
|
404 | (1) |
|
|
|
404 | (1) |
|
|
|
404 | (1) |
|
|
|
404 | (1) |
|
|
|
405 | (1) |
|
Neuropsychology and Psychology |
|
|
405 | (1) |
|
|
|
406 | (1) |
|
|
|
406 | (1) |
|
|
|
406 | (1) |
|
|
|
407 | (1) |
|
|
|
407 | (1) |
|
|
|
407 | (1) |
|
|
|
407 | (1) |
|
|
|
408 | (28) |
| Conclusion |
|
409 | (1) |
| Appendix A Case Study |
|
409 | (16) |
| Acknowledgments |
|
425 | (1) |
| References |
|
426 | (4) |
| Recommended Reading |
|
430 | (30) |
| Introduction |
|
436 | (30) |
|
Pulmonary Differences in Children |
|
|
436 | (1) |
|
Congenital Disorders vs. Acquired Disorders |
|
|
437 | (1) |
|
|
|
437 | (3) |
|
Introduction and Pathophysiology |
|
|
437 | (1) |
|
Classification of Disease Severity |
|
|
438 | (1) |
|
|
|
438 | (1) |
|
Life Care Planning Implications |
|
|
439 | (1) |
|
|
|
440 | (5) |
|
Introduction and Pathophysiology |
|
|
440 | (1) |
|
Initial Presentation and Diagnosis |
|
|
441 | (1) |
|
|
|
441 | (1) |
|
Nonpulmonary Manifestations |
|
|
442 | (1) |
|
Complications and Life Care Planning Implications |
|
|
442 | (3) |
|
Bronchopulmonary Dysplasia or Chronic Lung Disease of Prematurity |
|
|
445 | (21) |
|
|
|
446 | (1) |
|
|
|
446 | (1) |
|
|
|
447 | (1) |
|
|
|
447 | (1) |
|
Life Care Planning Implications |
|
|
448 | (1) |
|
Idiopathic Congenital Central Hypoventilation Syndrome |
|
|
449 | (4) |
|
Pathophysiology and Initial Diagnosis |
|
|
449 | (1) |
|
|
|
450 | (1) |
|
|
|
450 | (1) |
|
Ongoing Care and Life Care Planning Implications |
|
|
451 | (2) |
|
Tracheoesophageal Fistula with and without Esophageal Atresia |
|
|
453 | (3) |
|
|
|
453 | (1) |
|
Outcomes and Complications |
|
|
454 | (1) |
|
Life Care Planning Implications |
|
|
454 | (2) |
|
Congenital Diaphragmatic Hernia |
|
|
456 | (10) |
|
|
|
456 | (1) |
|
|
|
457 | (1) |
|
Life Care Planning Implications |
|
|
458 | (8) |
| Conclusion |
|
460 | (1) |
| Resources for Additional Information |
|
460 | (1) |
| References |
|
461 | (25) |
| Introduction |
|
466 | (52) |
|
|
|
466 | (1) |
|
Medical Classification of Brain Injury |
|
|
467 | (1) |
|
|
|
468 | (5) |
|
Disorders of Consciousness |
|
|
468 | (1) |
|
|
|
469 | (1) |
|
Brain Edema and Elevated Intracranial Pressure |
|
|
469 | (1) |
|
|
|
470 | (1) |
|
|
|
470 | (1) |
|
|
|
471 | (1) |
|
Neuroendocrine Abnormalities |
|
|
472 | (1) |
|
|
|
472 | (1) |
|
|
|
473 | (1) |
|
|
|
473 | (1) |
|
Movement Disorders and Muscle Tone Abnormalities |
|
|
473 | (1) |
|
Musculoskeletal Complications |
|
|
474 | (30) |
|
|
|
474 | (1) |
|
Contractures and Joint Deformity |
|
|
475 | (1) |
|
|
|
475 | (1) |
|
Dysphagia, Feeding, and Nutrition |
|
|
476 | (1) |
|
Bowel and Bladder Dysfunction |
|
|
476 | (1) |
|
|
|
477 | (1) |
|
|
|
477 | (1) |
|
|
|
478 | (1) |
|
|
|
478 | (1) |
|
Brain Development and Predicting Lifelong Needs and Supports |
|
|
478 | (1) |
|
Premise: Young Peoples' Brains Are Developing, Maturing Organs |
|
|
479 | (2) |
|
Premise: Neuroplasticity Is More Complicated than We Previously Thought |
|
|
481 | (1) |
|
Premise: Young People with TBI Often Fall Further and Further behind Their Peers |
|
|
482 | (3) |
|
Premise: We Can Predict Long-Term Deficits and Needs of Individuals after TBI |
|
|
485 | (19) |
| Conclusion |
|
486 | (1) |
| Case Study: ID |
|
487 | (10) |
| References |
|
497 | (17) |
|
Pathophysiology of Diabetes Mellitus |
|
|
504 | (5) |
|
|
|
504 | (4) |
|
|
|
505 | (1) |
|
|
|
505 | (1) |
|
|
|
506 | (1) |
|
|
|
506 | (1) |
|
|
|
507 | (1) |
|
|
|
507 | (1) |
|
|
|
507 | (1) |
|
|
|
508 | (1) |
|
|
|
508 | (1) |
|
Drug Therapy for Type 2 Diabetes in Youth |
|
|
509 | (1) |
|
|
|
509 | (1) |
|
|
|
509 | (3) |
|
|
|
510 | (1) |
|
Microvascular Complications |
|
|
510 | (1) |
|
|
|
511 | (1) |
|
|
|
511 | (1) |
|
|
|
511 | (1) |
|
Psychosocial Complications |
|
|
512 | (1) |
|
Life Care Planning Issues |
|
|
512 | (6) |
|
|
|
512 | (6) |
| Conclusion |
|
514 | (1) |
| Acknowledgment |
|
514 | (1) |
| References |
|
514 | (23) |
| Introduction |
|
518 | (22) |
|
|
|
518 | (1) |
|
Epidemiology and Etiology |
|
|
518 | (1) |
|
Types of Brachial Plexus Birth Palsies |
|
|
519 | (1) |
|
|
|
520 | (1) |
|
Ancillary Diagnostic Studies |
|
|
521 | (2) |
|
|
|
523 | (9) |
|
|
|
524 | (1) |
|
Secondary Reconstructive Surgery |
|
|
525 | (7) |
|
|
|
526 | (4) |
|
|
|
530 | (1) |
|
|
|
531 | (1) |
|
|
|
531 | (1) |
|
General Principles of Rehabilitation following Tendon Transfer |
|
|
532 | (1) |
|
|
|
532 | (1) |
|
|
|
533 | (8) |
|
|
|
533 | (1) |
|
|
|
534 | (1) |
|
|
|
534 | (2) |
|
|
|
534 | (1) |
|
|
|
534 | (1) |
|
|
|
535 | (1) |
|
|
|
535 | (1) |
|
|
|
535 | (1) |
|
Counseling/Psychological Support |
|
|
535 | (1) |
|
Equipment/Home Modifications |
|
|
536 | (1) |
|
Examples or Assistive Devices |
|
|
536 | (1) |
|
Attendant Care/Replacement Services |
|
|
536 | (5) |
| References |
|
537 | (22) |
| Introduction |
|
540 | (26) |
|
Prevalence of Pediatric Burn Injury |
|
|
541 | (1) |
|
|
|
542 | (1) |
|
|
|
543 | (1) |
|
Common Surgical Procedures in Acute Care |
|
|
543 | (1) |
|
|
|
544 | (1) |
|
|
|
545 | (1) |
|
|
|
546 | (1) |
|
|
|
546 | (1) |
|
Z-Plasty/Scar Contracture Excision |
|
|
547 | (1) |
|
|
|
547 | (1) |
|
Rehabilitation Issues and Interventions |
|
|
547 | (1) |
|
|
|
548 | (1) |
|
Educational Issues and School Reentry |
|
|
548 | (1) |
|
|
|
549 | (1) |
|
|
|
549 | (2) |
|
Therapeutic Interventions |
|
|
549 | (1) |
|
Pressure Garments and Splints |
|
|
549 | (1) |
|
|
|
550 | (1) |
|
|
|
550 | (1) |
|
|
|
550 | (1) |
|
|
|
551 | (1) |
|
|
|
551 | (1) |
|
Presence of Inhalation Injury |
|
|
551 | (1) |
|
|
|
551 | (1) |
|
|
|
552 | (1) |
|
|
|
552 | (2) |
|
Psychological Support Recommendations |
|
|
554 | (1) |
|
Functional Aids and Mobility Equipment |
|
|
554 | (1) |
|
|
|
555 | (1) |
|
|
|
555 | (1) |
|
Burn Injury: Damage Assessment Checklist |
|
|
556 | (1) |
|
Pediatric Burn Life Care Planning Checklist |
|
|
556 | (2) |
|
|
|
558 | (9) |
|
|
|
558 | (1) |
|
|
|
559 | (1) |
|
|
|
559 | (8) |
| Prevention |
|
559 | (1) |
| Summary |
|
559 | (1) |
| References |
|
560 | (23) |
| Introduction |
|
566 | (26) |
|
Children with Mental Health Problems: Who Are They? |
|
|
567 | (2) |
|
Potential Differences in Supporting the Mental Health Population |
|
|
569 | (1) |
|
Building on Existing Frameworks: Care Management |
|
|
570 | (3) |
|
|
|
571 | (1) |
|
|
|
571 | (1) |
|
The Principles of Care Management |
|
|
571 | (1) |
|
Recommended Standards for Care Coordination/Case Management |
|
|
571 | (1) |
|
Knowledge Needed to Perform Care Management |
|
|
572 | (1) |
|
Building a Family-Driven System of Care Approach to the Delivery of Care Coordination |
|
|
573 | (5) |
|
|
|
573 | (2) |
|
|
|
575 | (1) |
|
Cultural and Linguistic Competence |
|
|
576 | (1) |
|
|
|
576 | (1) |
|
|
|
577 | (1) |
|
|
|
577 | (1) |
|
|
|
577 | (1) |
|
Benefits of the Family-Driven System of Care Approach |
|
|
578 | (1) |
|
Components of Mental Health Care Management Planning |
|
|
578 | (5) |
|
|
|
578 | (2) |
|
Development of the Case File |
|
|
580 | (1) |
|
Care Management/Service Plans |
|
|
580 | (1) |
|
|
|
581 | (1) |
|
|
|
581 | (2) |
|
Financing Behavioral Health Care Services |
|
|
583 | (1) |
|
|
|
583 | (10) |
| Conclusion |
|
583 | (1) |
| Appendix A Examining Family-Driven Practices in Life Planning Programs and Services |
|
584 | (2) |
| Appendix B Elements of the Case File |
|
586 | (1) |
| Appendix C Financing Behavioral, Emotional, and Mental Health Services |
|
587 | (1) |
| Appendix D Key Elements of Natural Supports |
|
588 | (1) |
| References |
|
589 | (14) |
| Incidence |
|
592 | (30) |
|
Surgical Considerations for the Pediatric Amputee |
|
|
593 | (2) |
|
Essential Differences between Child and Adult Amputee |
|
|
595 | (1) |
|
Frequency of Prosthetic Change from Growth |
|
|
595 | (1) |
|
Emotional Differences in Maturing with an Amputation |
|
|
596 | (1) |
|
Using Components That Are Age and Developmentally Appropriate |
|
|
596 | (1) |
|
Treating the Parents in Addition to the Child |
|
|
597 | (1) |
|
|
|
597 | (1) |
|
|
|
597 | (1) |
|
Initial Prosthetic Device |
|
|
598 | (1) |
|
|
|
598 | (1) |
|
|
|
598 | (1) |
|
|
|
598 | (1) |
|
Educational, Vocational, and Avocational Outcomes |
|
|
599 | (1) |
|
|
|
599 | (1) |
|
|
|
599 | (2) |
|
Premature Onset of Degenerative Changes |
|
|
599 | (2) |
|
Using the Deutsch Categories of Life Care Planning |
|
|
601 | (22) |
|
|
|
601 | (1) |
|
Projected Therapeutic Modalities |
|
|
601 | (1) |
|
|
|
601 | (1) |
|
|
|
601 | (1) |
|
Aids for Independent Function |
|
|
601 | (1) |
|
|
|
601 | (1) |
|
Home Furnishings and Accessories |
|
|
602 | (1) |
|
|
|
602 | (1) |
|
|
|
602 | (1) |
|
Future Medical Care: Routine |
|
|
602 | (1) |
|
|
|
602 | (1) |
|
Health and Strength Maintenance |
|
|
602 | (1) |
|
Architectural Renovations |
|
|
603 | (1) |
|
|
|
603 | (1) |
|
Vocational/Educational Plan |
|
|
603 | (1) |
|
Future Medical Care: Aggressive Treatment |
|
|
603 | (1) |
|
Orthopedic Equipment Needs |
|
|
603 | (1) |
|
|
|
603 | (20) |
| Conclusion |
|
603 | (1) |
| Case Study: SJ |
|
604 | (15) |
| References |
|
619 | (1) |
| Related Publications |
|
620 | (36) |
| Introduction |
|
622 | (58) |
|
|
|
623 | (2) |
|
Criteria and Evaluation for Organ Transplantation |
|
|
625 | (2) |
|
Psychosocial Considerations for Pediatric Transplant |
|
|
626 | (1) |
|
Pediatric Renal Transplantation |
|
|
627 | (11) |
|
Indications for Pediatric Renal Transplant |
|
|
629 | (1) |
|
|
|
630 | (1) |
|
|
|
631 | (2) |
|
Elements of Perioperative Care |
|
|
633 | (1) |
|
Posttransplant Management and Follow-Up |
|
|
634 | (1) |
|
Immunosuppression Therapy |
|
|
635 | (1) |
|
First-Year Posttransplant Follow-Up and Management |
|
|
635 | (1) |
|
Long-Term Follow-Up and Management |
|
|
636 | (1) |
|
Graft and Patient Survival |
|
|
637 | (1) |
|
Pediatric Liver and Intestinal Transplantation |
|
|
638 | (13) |
|
Indications for Pediatric Liver Transplant |
|
|
638 | (2) |
|
|
|
640 | (1) |
|
|
|
641 | (1) |
|
Elements of Perioperative Care |
|
|
642 | (1) |
|
Posttransplant Management and Follow-Up |
|
|
642 | (2) |
|
Graft and Patient Survival |
|
|
644 | (7) |
|
Pediatric Thoracic Transplantation |
|
|
651 | (30) |
|
Indications for Pediatric Heart Transplant |
|
|
651 | (1) |
|
Indications for Pediatric Lung Transplant |
|
|
651 | (1) |
|
|
|
652 | (1) |
|
|
|
653 | (1) |
|
Elements of Perioperative Care |
|
|
653 | (1) |
|
Posttransplant Management and Follow-Up |
|
|
654 | (2) |
|
Graft and Patient Survival |
|
|
656 | (25) |
| Unique Pediatric Transplantation Issues |
|
656 | (7) |
| Special Issues in Life Care Planning |
|
663 | (1) |
| Case Study |
|
664 | (12) |
| References |
|
676 | (16) |
| Introduction |
|
680 | (17) |
|
|
|
681 | (1) |
|
|
|
682 | (6) |
|
|
|
683 | (1) |
|
Potential Therapies or Interventions |
|
|
684 | (1) |
|
Degree of Neuromotor Impairment |
|
|
685 | (1) |
|
|
|
685 | (3) |
|
|
|
686 | (1) |
|
|
|
687 | (1) |
|
Co-Morbid Medical Conditions |
|
|
687 | (1) |
|
Trisomy 21 as an Example of Life Care Planning Issues in Genetic Conditions |
|
|
688 | (1) |
|
|
|
689 | (1) |
|
Durable Medical Equipment |
|
|
689 | (1) |
|
|
|
689 | (9) |
|
"Alternative Therapies" Commonly Included in a Life Care Plan |
|
|
690 | (8) |
|
|
|
690 | (1) |
|
|
|
690 | (1) |
|
|
|
690 | (1) |
|
|
|
690 | (1) |
|
|
|
690 | (1) |
|
|
|
691 | (1) |
|
|
|
691 | (7) |
| Conclusion |
|
692 | (1) |
| Selected References of Published Life Expectancies for Specific Genetic Conditions |
|
693 | (1) |
| Resources |
|
694 | (1) |
| References |
|
694 | (20) |
| Introduction |
|
697 | (19) |
|
Overview of Visual Impairments |
|
|
698 | (4) |
|
Cortical Visual Impairment |
|
|
698 | (1) |
|
Retinopathy of Prematurity |
|
|
699 | (1) |
|
|
|
699 | (1) |
|
|
|
700 | (1) |
|
|
|
701 | (1) |
|
|
|
701 | (1) |
|
|
|
702 | (1) |
|
Life Care Planning Implications |
|
|
702 | (2) |
|
|
|
704 | (8) |
|
|
|
712 | (5) |
|
|
|
712 | (1) |
|
|
|
712 | (1) |
|
Service Providers and Agencies for the Blind and Visually Impaired |
|
|
712 | (5) |
| References |
|
714 | (38) |
| Introduction |
|
716 | (52) |
|
What Is a Pediatric Hearing Loss? |
|
|
717 | (1) |
|
Who Diagnoses a Pediatric Hearing Loss? |
|
|
718 | (1) |
|
Scope of Practice for Audiology |
|
|
719 | (2) |
|
Children with Hearing Disorders |
|
|
721 | (1) |
|
Basic Anatomy and Physiology of Hearing for the Life Care Planner |
|
|
722 | (2) |
|
Pediatric Hearing Assessment |
|
|
724 | (4) |
|
Behavioral Testing Measures |
|
|
725 | (1) |
|
|
|
725 | (1) |
|
Auditory Brainstem Response Testing |
|
|
726 | (1) |
|
|
|
726 | (1) |
|
|
|
727 | (1) |
|
|
|
728 | (1) |
|
Age at Onset of Hearing Loss |
|
|
728 | (1) |
|
Mild and Unilateral Hearing Loss in Children |
|
|
728 | (2) |
|
Auditory Processing Disorders |
|
|
730 | (2) |
|
Assessment of Auditory Processing Disorders by a Pediatric Audiologist |
|
|
730 | (1) |
|
Auditory Processing Disorder Management by a Pediatric Audiologist |
|
|
731 | (1) |
|
Large Vestibular Aqueduct Disorders |
|
|
732 | (1) |
|
|
|
733 | (2) |
|
|
|
735 | (2) |
|
Special Features for Hearing Aids |
|
|
736 | (1) |
|
Captioning Technology for Children with Hearing Loss |
|
|
737 | (2) |
|
|
|
739 | (6) |
|
Types of Cochlear Implants |
|
|
739 | (2) |
|
|
|
741 | (1) |
|
|
|
742 | (1) |
|
Bilateral Cochlear Implants in Children |
|
|
743 | (1) |
|
Questions about Cochlear Implant Coding |
|
|
744 | (1) |
|
Other Implantable Hearing Devices |
|
|
745 | (1) |
|
|
|
745 | (1) |
|
Other Assistive Listening Devices |
|
|
745 | (2) |
|
|
|
746 | (1) |
|
|
|
747 | (1) |
|
|
|
747 | (1) |
|
|
|
747 | (1) |
|
|
|
747 | (1) |
|
|
|
747 | (1) |
|
|
|
747 | (3) |
|
Sound Field Amplification |
|
|
749 | (1) |
|
How to Communicate with Children with Hearing Loss |
|
|
750 | (1) |
|
|
|
750 | (1) |
|
|
|
750 | (1) |
|
|
|
751 | (1) |
|
|
|
751 | (1) |
|
Funding Issues Related to Hearing Services |
|
|
751 | (1) |
|
|
|
752 | (16) |
| Appendix A Sample Life Care Plan for Child with Hearing Impairment |
|
752 | (2) |
| Appendix B Basic List of CPT Codes for Audiology Services |
|
754 | (1) |
| Appendix C What to Expect: The Effects of Hearing Loss on Human Communication |
|
755 | (1) |
| Appendix D Hearing Resources |
|
756 | (3) |
| Appendix E Portion of a Model Superbill for Pediatric Audiology |
|
759 | (4) |
| References |
|
763 | (12) |
| Introduction |
|
768 | (24) |
|
History of Bilirubin Encephalopathy |
|
|
768 | (2) |
|
|
|
770 | (1) |
|
Kernicterus Classification |
|
|
770 | (2) |
|
|
|
771 | (1) |
|
Motor-Predominant Kernicterus |
|
|
771 | (1) |
|
Auditory-Predominant Kernicterus |
|
|
771 | (1) |
|
Subtle Kernicterus or Bilirubin-Induced Neurological Dysfunction (BIND) |
|
|
771 | (1) |
|
Classification by Severity and Type of Sequelae |
|
|
771 | (1) |
|
|
|
772 | (1) |
|
|
|
772 | (2) |
|
Implications for the Life Care Planner |
|
|
774 | (18) |
| Conclusion |
|
775 | (1) |
| Case Study |
|
775 | (13) |
| Appendix: Common Kernicterus Resources for the Life Care Planner |
|
788 | (1) |
| References |
|
789 | (12) |
| Introduction |
|
792 | (13) |
|
|
|
792 | (3) |
|
|
|
793 | (1) |
|
|
|
793 | (1) |
|
|
|
794 | (1) |
|
Home Mechanical Ventilation in Children |
|
|
795 | (11) |
|
Planning for Initial Discharge of the Mechanically Ventilated Child |
|
|
795 | (2) |
|
Initial Referrals for Skilled Nursing and Durable Medical Equipment |
|
|
797 | (1) |
|
Ongoing Care and Life Care Planning Implications |
|
|
798 | (2) |
|
Implications for the Life Care Planner |
|
|
800 | (6) |
| References |
|
801 | (15) |
| Introduction |
|
805 | (14) |
|
Hiring a Life Care Planning Expert |
|
|
806 | (1) |
|
Working with the Life Care Planner |
|
|
807 | (1) |
|
Dealing with the Defense Attack |
|
|
808 | (6) |
|
Daubert and the Admissibility of Expert Life Care Planner Testimony |
|
|
808 | (6) |
|
|
|
814 | (2) |
|
A Case Illustration: Coleman v. United States of America and Touchette |
|
|
815 | (1) |
|
Presenting the Life Care Planner in Court |
|
|
816 | (4) |
| Conclusion |
|
816 | (1) |
| References |
|
817 | (17) |
| Introduction |
|
819 | (20) |
|
The Life Care Planner as an Expert Witness |
|
|
820 | (3) |
|
The Defense Life Care Planner |
|
|
823 | (1) |
|
Evaluating the Plaintiff's Life Care Plan |
|
|
824 | (8) |
|
The Role of the Economist |
|
|
832 | (8) |
| Conclusion |
|
834 | (1) |
| References |
|
834 | (10) |
| Introduction |
|
839 | (6) |
|
|
|
840 | (1) |
|
|
|
840 | (1) |
|
Methodology: Developing Opinions |
|
|
840 | (1) |
|
Establishing and Maintaining Files |
|
|
841 | (1) |
|
Mediation and Arbitration |
|
|
841 | (1) |
|
|
|
841 | (2) |
|
|
|
843 | (3) |
| Conclusion |
|
844 | (1) |
| References |
|
844 | (1) |
| Suggested Readings |
|
844 | (38) |
| Introduction |
|
845 | (43) |
|
Foundations for Life Care Planning |
|
|
846 | (2) |
|
|
|
848 | (3) |
|
Standard of Care and Malpractice |
|
|
851 | (1) |
|
|
|
852 | (1) |
|
|
|
852 | (3) |
|
|
|
855 | (2) |
|
How Is Life Expectancy Determined? |
|
|
857 | (1) |
|
|
|
858 | (22) |
|
Applying the Literature to Practice |
|
|
880 | (8) |
| Conclusion |
|
882 | (1) |
| References |
|
882 | (22) |
| Introduction |
|
888 | (20) |
|
History of the Education of Disabled Children |
|
|
888 | (1) |
|
America's Initial Response to Disabled Children |
|
|
888 | (1) |
|
|
|
889 | (1) |
|
Federal Government Initiatives and the Civil Rights Movement |
|
|
889 | (2) |
|
Strengthening Federal Mandates to Educate Children with Disabilities |
|
|
891 | (18) |
|
Section 504 of the Rehabilitation Act of 1973 |
|
|
891 | (1) |
|
The Americans with Disabilities Act |
|
|
892 | (6) |
|
|
|
893 | (1) |
|
|
|
893 | (1) |
|
|
|
893 | (1) |
|
Children with Developmental Delays |
|
|
894 | (1) |
|
Determination and Eligibility Process |
|
|
894 | (1) |
|
|
|
894 | (1) |
|
|
|
894 | (1) |
|
Informed Parental Consent |
|
|
895 | (1) |
|
|
|
896 | (1) |
|
|
|
896 | (1) |
|
Determination of Eligibility |
|
|
897 | (1) |
|
Individual Education Program |
|
|
897 | (1) |
|
Free Appropriate Public Education (FAPE) |
|
|
898 | (1) |
|
|
|
898 | (1) |
|
|
|
899 | (4) |
|
|
|
899 | (1) |
|
|
|
900 | (1) |
|
|
|
901 | (1) |
|
Services and Definitions Under IDEA Relevant to Pediatric Lite Care Practice |
|
|
901 | (1) |
|
Assistive Technological Device |
|
|
901 | (1) |
|
|
|
902 | (1) |
|
Part C---Infants and Toddlers with Disabilities |
|
|
903 | (1) |
|
Federal Initiatives in the New Millennium |
|
|
903 | (6) |
|
No Child Left Behind Act of 2001 |
|
|
903 | (6) |
| Conclusion |
|
904 | (1) |
| National Advocacy Groups and Organizations |
|
904 | (2) |
| References |
|
906 | (15) |
| Introduction |
|
908 | (32) |
|
What Is Assistive Technology? |
|
|
909 | (1) |
|
Assistive Technology Components |
|
|
910 | (7) |
|
|
|
910 | (2) |
|
Augmentative and Alternative Communication |
|
|
912 | (1) |
|
|
|
913 | (1) |
|
Devices That Assist with Listening and Seeing |
|
|
914 | (1) |
|
Accessible Medical Instrumentation |
|
|
914 | (1) |
|
Adapted Play and Recreation |
|
|
915 | (1) |
|
Environmental Control and Manipulation, Rehabilitation Robotics |
|
|
915 | (1) |
|
Mobility and Powered Mobility |
|
|
915 | (1) |
|
Prosthetics and Other Technologies That Replace Body Parts and Functions |
|
|
916 | (1) |
|
Integration of Assistive Technology into Daily Life, Home, and School |
|
|
916 | (1) |
|
|
|
917 | (1) |
|
Human Factors and Other Parameters That Influence Success and Failure with AT |
|
|
918 | (2) |
|
Funding Assistive Technology |
|
|
920 | (5) |
| Concluding Thoughts and Summary |
|
921 | (1) |
| Acknowledgments |
|
922 | (1) |
| Some Selected Online Resources |
|
922 | (2) |
| Some Selected Print References |
|
924 | (13) |
|
Evolution of the Medical Home Concept |
|
|
925 | (4) |
|
Characteristics of a Pediatric Medical Home |
|
|
929 | (7) |
|
|
|
930 | (1) |
|
|
|
931 | (1) |
|
|
|
932 | (1) |
|
|
|
933 | (1) |
|
|
|
933 | (1) |
|
|
|
934 | (2) |
|
|
|
936 | (1) |
|
Role of the Medical Home in Life Care Planning |
|
|
936 | (4) |
| References |
|
937 | (20) |
| Introduction |
|
940 | (35) |
|
Factors in Choosing Medical Equipment |
|
|
940 | (2) |
|
|
|
941 | (1) |
|
Changes Due to Age and Activity Level |
|
|
941 | (1) |
|
Changes in Physical or Cognitive Function |
|
|
942 | (1) |
|
Medical Equipment Categories |
|
|
942 | (1) |
|
|
|
942 | (1) |
|
|
|
943 | (6) |
|
|
|
943 | (1) |
|
Problems in Wheelchair Selection |
|
|
944 | (1) |
|
Manual Wheelchair vs. Stroller |
|
|
944 | (2) |
|
|
|
946 | (1) |
|
|
|
946 | (3) |
|
|
|
947 | (1) |
|
Custom Therapeutic Seating Systems |
|
|
947 | (1) |
|
Mobility and Accessibility Features |
|
|
948 | (1) |
|
|
|
948 | (1) |
|
Convenience and Activities of Daily Living Features |
|
|
948 | (1) |
|
Bathroom Safety Equipment |
|
|
949 | (1) |
|
Therapeutic Pediatric Equipment for the Home |
|
|
949 | (1) |
|
|
|
949 | (1) |
|
|
|
950 | (1) |
|
Maintenance and Replacement |
|
|
951 | (2) |
|
|
|
952 | (1) |
|
|
|
952 | (1) |
|
|
|
952 | (1) |
|
|
|
953 | (1) |
|
Replacement Allowance Worksheets |
|
|
953 | (1) |
|
Pricing of Medical Equipment |
|
|
953 | (3) |
|
|
|
956 | (4) |
| Conclusion |
|
957 | (1) |
| References |
|
957 | (15) |
|
|
|
960 | (1) |
|
|
|
961 | (2) |
|
|
|
962 | (1) |
|
|
|
962 | (1) |
|
|
|
962 | (1) |
|
|
|
962 | (1) |
|
Values/Value Clarification |
|
|
963 | (1) |
|
Policy and Societal Issues |
|
|
963 | (1) |
|
Evidence-Based Practice and Outcomes Research |
|
|
964 | (1) |
|
|
|
965 | (1) |
|
|
|
965 | (1) |
|
|
|
965 | (1) |
|
Uncertainty/Predicting Life's Course |
|
|
966 | (1) |
|
Life-Sustaining Treatment/Interventions |
|
|
966 | (2) |
|
Life-Enhancing Treatment/Interventions |
|
|
968 | (1) |
|
|
|
968 | (1) |
|
Safety vs. Risk and Benefit/Burden Analysis |
|
|
969 | (1) |
|
Quality of Life Considerations |
|
|
969 | (1) |
|
|
|
970 | (1) |
|
Navigating the Health Care and Educational Systems |
|
|
970 | (1) |
|
Parental Autonomy/Adolescent Decision Making |
|
|
971 | (1) |
|
|
|
971 | (1) |
|
|
|
972 | (4) |
| Summary |
|
972 | (1) |
| Acknowledgment |
|
973 | (1) |
| References |
|
973 | (9) |
| Introduction |
|
975 | (1) |
|
Objectives of Special Needs Planning |
|
|
976 | (1) |
|
|
|
977 | (1) |
|
Social Security Disability Insurance |
|
|
977 | (1) |
|
Supplemental Security Income |
|
|
977 | (1) |
|
|
|
978 | (2) |
|
|
|
978 | (1) |
|
|
|
978 | (1) |
|
Supplemental Nutrition Assistance Program |
|
|
979 | (1) |
|
State Children's Health Insurance Program |
|
|
979 | (1) |
|
State-Mandated Insurance Programs |
|
|
979 | (1) |
|
Selecting and Communicating to the Future Guardians/Caregivers |
|
|
979 | (1) |
|
Common Planning Mistakes of Special Needs Families |
|
|
980 | (1) |
|
What Is a Special Needs Trust? |
|
|
980 | (1) |
|
Special Needs Trusts in Your Estate Plan |
|
|
981 | (5) |
|
Types of Special Needs Trusts |
|
|
981 | (1) |
|
What Benefits Can a Special Needs Trust Provide? |
|
|
982 | (4) |
| Conclusion |
|
982 | (1) |
| Resources |
|
982 | |
|
|
|
986 | (1) |
|
Asking Questions, Asking for Help |
|
|
987 | (1) |
|
Grieving and Coping Skills |
|
|
988 | (1) |
|
Learning Organizational Skills |
|
|
989 | (1) |
|
Self-Determination and Inclusion |
|
|
990 | |
| References |
|
992 | |
Lisainfo e-raamatute kohta