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E-raamat: Researching Health Together: Engaging Patients and Stakeholders, From Topic Identification to Policy Change

Edited by (Virginia Commonwealth University, USA)
  • Formaat: PDF+DRM
  • Ilmumisaeg: 02-Mar-2020
  • Kirjastus: SAGE Publications Inc
  • Keel: eng
  • ISBN-13: 9781544351070
  • Formaat - PDF+DRM
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  • Formaat: PDF+DRM
  • Ilmumisaeg: 02-Mar-2020
  • Kirjastus: SAGE Publications Inc
  • Keel: eng
  • ISBN-13: 9781544351070

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The challenges of addressing health disparities, the ethical imperative to include stakeholders in research, and the slow translation of research evidence into practice are all driving a movement towards more community-based and participatory approaches to research. Researching Health Together brings together authors who have produced innovative methods or implemented projects focused on different stages of the research process, from question development to evaluation and translation. Editor Emily B. Zimmerman gathers exemplary new methods and projects into one place for the benefit of students designing research projects and proposals, those learning stakeholder-engaged methods, and those involved in implementing and funding stakeholder-engaged projects. Each chapter addresses: how engagement was conceptualized, organized, and implemented; how engagement was evaluated; impacts on processes and outcomes of the project; and facilitators, barriers, and lessons learned. The book serves as a core textbook for courses in community-based health research at the graduate level.

"[ This book] focuses only on translational health research and expands beyond CBPR to include practice-based research networks (PBRN) and stakeholder-engaged research within health systems.... The overall strengths of this book are its in-depth and almost inspirational focus on CBPR methodology, be those actual geographic or cultural communities or disease-based communities.... Researching Health Together, in its first edition, is a necessary bridge from the theory of participatory health research to its application across research environments." - Journal of Participatory Research Methods

Arvustused

An important text presenting the interface between community engagement and translational research. Well-researched and written chapters packed with up to date and revealing information on an important topic.  -- Lutchmie Narine * review * This is an impressive, comprehensive, and up-to-date volume on community engagement in health research. Drawing upon diverse conceptual models and empirical case studies, this book offers exciting, cutting-edge ideas in this rapidly growing field. A must-have for researchers and practitioners.  -- Jennifer Chan * Review * The book provides a coherent narrative through a progression of "building blocks" for understanding how research and policies can interface to benefit the quality of life of individuals and entire communities.  -- Marcello Maviglia * Review * This book is an amazing compendium of current methods for improving stakeholder engagement in research. Here readers can see different strategies working in different populations, for their own use.  -- Deborah J. Bowen * Review *

Foreword xi
Joe V. Selby
Acknowledgments xiii
About the Editor xv
Introduction 1(22)
Emily B. Zimmerman
Thomas W. Concannon
PART I STAKEHOLDER ENGAGEMENT IN RESEARCH TOPIC IDENTIFICATION AND MODELING
23(94)
Chapter 1 Grassroots to Grasstops: A Stepwise Approach to Identify Community Health Priorities
25(20)
Ann M. Cheney
Christina M. Reaves
Mary Figueroa
Alejandra Cabral
Greer Sullivan
Chapter 2 Deliberative Engagement of Communities in Decisions About Research Spending (DECIDERS)
45(27)
Susan Dorr Goold
Zachary E. Rowe
Karen Calhoun
Chapter 3 Group Model Building as a Community Engagement Strategy
72(20)
Faustine Williams
Peter S. Hovmand
Kurt C. Stange
Chapter 6 The SEED Method: A Multi-Level Stakeholder Approach to Research Question Development and Prioritization
92(25)
Emily B. Zimmerman
Sarah K. Cook
PART II STAKEHOLDER ENGAGEMENT IN RESEARCH DESIGN
117(76)
Chapter 5 The Community Engagement Studio: Tapping Into the Lived Experience of Community Members to Enhance Research
119(22)
Yvonne A. Joosten
Tiffany Israel
Leah Dunkel
Jacqueline Sims
Consuelo Hopkins Wilkins
Chapter 6 The History of PCORnet
141(17)
Kimberly Marschhauser
Claudia Grossmann
Maryan Zirkle
Chapter 7 Partners, Not Participants: Engaging Patients in the American BRCA Outcomes and Utilization of Testing (ABOUT) Network
158(16)
Marleah Dean
Sue J. Friedman
Rebecca Sutphen
Beth Ann Bourquardez Clark
Debra Duquette
Lisa F. Rezende
Chapter 8 Engagement Methods for Practice-Based Research Networks and the Challenges With Health Information Technology Implementation
174(19)
Alex Krist
Paulette Lail Kashiri
J. Eric Peele
Gary Iwamoto
Colin Banas
Jon Puro
PART III IMPLEMENTING STAKEHOLDER-ENGAGED RESEARCH
193(88)
Chapter 9 Free Range Humans: Engaging Patients, Practices, Providers, and People on the High Plains
195(21)
John M. Westfall
Linda Zittleman
Maret Felzien
Chapter 10 Engaging Stakeholders in Implementation of Evidence-Based Programs
216(14)
Annette Boaz
Allison Metz
Chapter 11 Communities Engaged and Advocating for a Smoke-free Environment (CEASE)
230(20)
Payam Sheikhattari
Jummai Apata
Laurie Bezold
Lisa Bleich
Fernando A. Wagner
Chapter 12 Translating Evidence to Policy: A Case Study of the San Francisco Soda Tax
250(31)
Roberto Vargas
Casey N. Palmer
James Rouse Iniguez
Paula Fleisher
Christina Goette
Brittni Chicuata
Sarah Campbell Fine
Eric Mar
Vanessa Bohm
Laura A. Schmidt
PART IV STAKEHOLDER ENGAGEMENT IN HEALTH AND HEALTH SYSTEMS INTERVENTIONS
281(80)
Chapter 13 Comparative Effectiveness Research: Stakeholder Engagement for a Comprehensive Perspective
283(19)
Kelly Williams
Tracy Carney
Jane Kogan
James Schuster
Chapter 14 Achieving Patient-Centered Health Care Innovation Through Stakeholder Engagement
302(21)
L. Ebony Boulware
Patti L. Ephraim
Teri Browne
Tara Strigo
Felicia Hill-Briggs
Jamie Green
Chelsie Hauer
Chapter 15 Community Engagement in an Urban AIAN Community to Address Diabetes Prevention
323(16)
Lisa G. Rosas
Jan J. Vasquez
Jill Evans
Rhonda McClinton-Brown
Alberto Ojeda
Matilda Owaleon-Ojeda
Wayne Scott Waters
Robert E. Garcia
Chapter 16 Boot Camp Translation
339(22)
Linda Zittleman
Ashley Espinoza
John M. Westfall
PART V GOVERNANCE, EVALUATION, AND ETHICS IN STAKEHOLDER-ENGAGED RESEARCH
361(73)
Chapter 17 Building the Proper Foundation: Governance for Stakeholder-Engaged Research
363(13)
Hotly L. Peay
Elizabeth L. Cope
Elizabeth Horn
Madelaine E. Faulkner
Thomas W. Carton
Megan O'Boyle
Lorraine B. Johnson
Chapter 18 Evaluating Engagement: Does the Involvement of Stakeholders Improve Research?
376(17)
Thomas W. Concannon
Chapter 19 Collaborating to Evaluate: The Si Texas Partnership-Centered Evaluation Model
393(20)
Michelle K. Brodesky
Karen Errichetti
M. Marlen Ramirez
San Juana Martinez-Gomez
Stephanie Tapia
Lisa Wolff
Mary V. Davis
Chapter 20 Ethics Considerations When Involving Patients as Partners in Health Research
413(21)
Donald J. Willison
Michael McDonald
Acronyms 434(4)
Glossary 438(5)
Index 443(16)
About the Contributors 459
Emily Zimmerman is an associate professor at the Virginia Commonwealth University Department of Family Medicine and Population Health, Division of Epidemiology. She is a senior researcher at the VCU Center on Society and Health, where she is director of community engaged research and qualitative research. She received her M.P.H. from the University of South Carolina, Arnold School of Public Health; Ph.D. in sociology at the City University of New York Graduate Center; and M.S. in social research from Hunter College. Her work focuses on social determinants of health, placed-based determinants of health, and community and stakeholder engagement. She developed the SEED Method for Stakeholder Engagement in Question Development and Prioritization, a multi-stakeholder methodology for involving stakeholders in research development. She also helped to found the Engaging Richmond community-university partnership at VCU in 2011 to identify and address the health priorities of residents in Richmonds East End. Currently, she is partnering with investigators at Virginia Tech, with funding from the Corporation for National and Community Service, to use the SEED Method to develop community action plans to address the opioid crisis in a rural Virginia community.