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E-raamat: Stories of Children's Pain: Linking Evidence to Practice

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  • Formaat: 272 pages
  • Ilmumisaeg: 15-Apr-2014
  • Kirjastus: Sage Publications Ltd
  • Keel: eng
  • ISBN-13: 9781473905047
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Stories of Children's Pain: Linking Evidence to PracticeSuurem pilt
  • Formaat: 272 pages
  • Ilmumisaeg: 15-Apr-2014
  • Kirjastus: Sage Publications Ltd
  • Keel: eng
  • ISBN-13: 9781473905047
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Working with a child in pain is difficult, unavoidable and especially challenging when the child cannot explain what they are feeling. In this important book, Bernie Carter and Joan Simons bring together experience, evidence and research to deconstruct the topic and present the reality of childrens pain.





Each chapter starts with a personal story from a child, a family member or a healthcare professional. The stories are drawn from a wealth of original research, and focus the reader on the individual child and their family. The chapter then goes on to introduce the relevant research, theory and implications for practice, so health professionals can use the evidence to support compassionate, child-centred care.









Among the topics addressed are:









- Ethical dilemmas



- Assessing pain



- Working in different settings



- Inexplicable pain









It is valuable reading for any healthcare student or professional working with children of all ages.

Arvustused

This excellent, evidence-based book will help practitioners personalise childrens pain in age-appropriate and family-centred ways. Every nurse that has contact with neonates and children should read it and take note.  -- Professor Jane Noyes, Chair in Health Services Research and Child Health, Bangor University and Visiting Professor of Child Health, University College Dublin Carter and Simons frame their thorough discussions of the evidence-based literature on pain within extended first-person stories of the children themselves, their families, and the nurses struggling to provide good care. Real people with fears, frustrations, and losses are never subsumed into that abstract entity called "patients". Carter and Simons make a clear case for how much pain matters in treating illness, and why personal caring makes all the difference in treating pain.









  -- Arthur W. Frank, Professor Emeritus, University of Calgary, author of The Wounded Storyteller and Letting Stories Breathe

List of Figures and Tables
xi
About the Authors xiii
Acknowledgements xv
Publisher's Acknowledgements xvii
Introduction: In the Beginning xix
1 Managing Neonatal Pain
Lucas's and Lily's Stories
1(1)
Introduction
2(1)
Neonatal pain in context
2(2)
Management of neonatal pain
4(1)
Pain assessment
5(4)
Pain-relieving interventions and the role of parents
9(1)
Guidelines on the management of neonatal pain
10(1)
Conclusion
11(1)
References
12(5)
2 Pain Management: Advice on Discharge
Holly's Story
17(1)
Current recommendations for the management of pain in children
18(1)
So why is available knowledge not being utilised?
19(1)
Parents and pain
20(1)
Holly's pain
21(2)
Nurses' knowledge
23(2)
Barriers to pain management
25(1)
Pharmacological management of Holly's pain
26(1)
Conclusion
27(1)
References
28(5)
3 Managing Procedural Pain
Tilli's, Alice's and Toby's stories
33(1)
Introduction
34(1)
Procedure-related pain: definition, incidence and cause
35(1)
How well are we doing in managing procedural pain?
36(1)
Impact and outcomes of procedural pain
37(1)
Advocacy and comfort, rights and responsibilities
38(1)
Planning a potentially painful procedure
39(6)
Pharmacological and non-pharmacological interventions for managing pain associated with procedures
45(5)
Conclusion
50(2)
References
52(5)
4 Pain in Sickle Cell Disease
Vivian's and Fauzana's stories
57(2)
Introduction
59(1)
What happens in painful vaso-occlusive episodes?
59(3)
Managing a sickle cell crisis
62(1)
Managing a sickle cell crisis at home
63(1)
The need for continuous improvement
64(1)
Guidelines
65(2)
Conclusion
67(1)
References
68(3)
5 Parents Managing their Children's Pain
Noah's, Ollie's and Ruari's Stories
71(1)
Introduction
72(1)
Two stories, two starting points, at least two outcomes
73(1)
Parents as first line managers of their children's illness and pain
74(4)
Seeking help
78(2)
Conclusion
80(1)
References
81(2)
6 Existential Pain and the Importance of Place and Presence
Erik's Story
83(2)
Introduction
85(1)
Suffering, a sense of place, and finding an anchor
86(3)
Presence, caring and compassion
89(2)
Conclusion
91(1)
References
92(3)
7 Managing Pain in a PICU
Becky's Story
95(1)
Introduction
96(1)
Pain in critical care
96(1)
Unrelieved pain in critical care
96(1)
Pain assessment
97(1)
Pain assessment tools in critical care
98(4)
Analgesics
102(1)
Nurses and pain in critical care
103(2)
Conclusion
105(1)
References
106(5)
8 Assessing and Managing Pain in a Child who is Cognitively Impaired
Grace's Story
111(1)
Introduction
112(1)
What do we mean by children with cognitive impairment?
112(2)
Types and causes of pain experienced by children with cognitive impairment
114(2)
Assessing the pain experienced by children with cognitive impairment
116(8)
Involvement of parents in assessment of pain
124(1)
Preventing and treating the pain of children with cognitive impairment
124(2)
Conclusion
126(2)
References
128(3)
9 Fear, Pain and Illness
Abongile's and Sam's Stories
131(3)
Introduction
134(1)
Children's understanding of health, illness and injury, and pain
134(4)
Children's fears about pain and being in hospital
138(2)
Children's understanding about pain
140(1)
Reducing pain-related fear
141(1)
Conclusion
142(2)
References
144(5)
10 Acute Pain Developing into Chronic Pain
Ahmet's story
149(1)
Introduction
149(3)
Acute and chronic pain
152(2)
What are the benefits of using a multidimensional tool?"
154(3)
Implications for practice
157(1)
Conclusion
157(1)
References
158(5)
11 Language, Metaphor, Imagery and the Expression of Pain
Tanya Tia's, Shantell's and Hattie's Stories
163(1)
Introduction
164(1)
The language(s) of pain
165(6)
Communicating meanings
171(2)
Conclusion
173(1)
References
174(3)
12 Minor Injury, Acute Pain, Wounds and What Really Hurts
Luci's Story
177(1)
Introduction
177(1)
Minor injuries and the risks associated with physical activity
178(1)
Abrasions
179(1)
Why wounds hurt
180(1)
Wound management and wound-related pain
181(7)
Conclusion
188(1)
References
189(4)
13 Non-pharmacological Methods of Pain Relief
Ben's and Maria's Stories
193(1)
Introduction
194(1)
Guided imagery: its uses and effectiveness
195(1)
How does guided imagery work?
196(2)
The use of massage
198(1)
The use and effect of non-pharmacological interventions for pain relief
199(1)
The need for nurses to instigate pain care
200(1)
The role of parents
201(1)
Implications for practice
202(1)
Conclusion
203(1)
References
204(3)
14 Neuropathic Pain
Sam's Story
207(1)
Introduction
207(1)
Neuropathic pain
208(1)
Physiology of neuropathic pain
209(1)
Effects of neuropathic pain
209(1)
Diagnosing neuropathic pain
209(2)
Treatment and pharmacological management of neuropathic pain
211(2)
Neuropathic pain in adolescence
213(1)
Effect on parents
214(1)
Coping with pain
215(2)
Conclusion
217(1)
References
218(3)
15 Organisational Imperatives and Individual Responsibility to Avoid Poor Pain Management
Tom's Story
221(1)
Introduction
222(1)
Prevalence of persisting pain at end of life
223(1)
Suffering and distress at the end of life
224(1)
Managing cancer pain: an overview of issues
225(3)
Palliative care and early integration
228(1)
Organisational and individual imperatives
229(3)
Conclusion
232(2)
References
234(5)
Conclusion: An Ending as Well as Potential New Beginnings 239(2)
References 241(2)
Index 243
Bernie Carter is Professor of Childrens Nursing at the University of Central Lancashire and Alder Hey Childrens NHS Foundation Trust in the United Kingdom. She is a Clinical Professor at the University of Tasmania and Editor-in-Chief for the Journal of Child Health Care. She was made a Fellow of the Royal College of Nursing in recognition of her contributions to the field of childrens pain.

Bernies research and writing focuses on childrens pain experiences and the assessment of childrens pain. She is particularly interested in improving the lives of children with complex health care needs and life limiting/threatening illness. Bernies research work draws particularly on narrative and appreciative inquiry and on arts-based methods as a means of engaging with children and eliciting stories of their experiences, hopes, beliefs and concerns. Bernie believes that stories are at the heart of the connections we make with children, families and their experiences of pain.
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