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E-raamat: Subtle Spectrum: An Honest Account of Autistic Discovery, Relationships and Identity

  • Formaat: EPUB+DRM
  • Ilmumisaeg: 13-Jun-2021
  • Kirjastus: Routledge
  • Keel: eng
  • ISBN-13: 9781000390803
  • Formaat - EPUB+DRM
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  • Formaat: EPUB+DRM
  • Ilmumisaeg: 13-Jun-2021
  • Kirjastus: Routledge
  • Keel: eng
  • ISBN-13: 9781000390803

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Am I autistic, or is autism something I suff er from? Should I come out, to my friends, to my family, to the people I work with? Should I drop the mask? How can I explain my experience to a neurotypical world?

The Subtle Spectrum

off ers an exploration into the postdiagnostic landscape of autism and the transformative journey of one woman, from her awareness of diff erence, through acceptance, to an embracing of autistic identity and beyond as she questions the cultural identity of autism.

Joanna’s narrative is enriched with insights from a range of diverse contributors, creating a refl ective opportunity for people to gain a better understanding of the experience of being autistic. With a focus on relationships built across a neurodiverse divide, the book considers topics as broad as mental health, work opportunities and abuse, weaving theory and research with lived experience to give true insight into the life of an autistic person, both pre- and post- diagnosis.

Written with a raw and engaging honesty, this is a crucial read for anybody who identifi es as autistic as an adult or teenager, or anyone looking to support somebody exploring diagnosis. It will also provide an invaluable insight for social workers, educators and relationships counsellors working with autistic people.

Arvustused

This wise and compassionate book provides a roadmap toward what author Jo Grace wonderfully calls 'a small private place, unseen by the outside world, a hidden gem' -- to personal acceptance of oneself as autistic, and the discovery of autistic community, in a world built for non-autistic people. It's engaging and uplifting reading for anyone on the spectrum, and for readers who want to comprehend the nature of autistic experience.

Steve Silberman, author, NeuroTribes: The Legacy of Autism and the Future of Neurodiversity

Grace writes with candour and intensity and this book supports those currently looking to claim an autistic identity as a definition of self, like a handrail you grab when trying to stand unaided.

It will also be of value to those working with adolescents and adults with a diagnosis of autism.

Mary Mountstephen, SEN Magazine

List of boxes
xii
Preface xv
Identity-first language xvii
Trigger warnings xviii
1 Introduction
1(2)
2 Mapping experiences of being a diagnosed autistic: more of a doodle than an Ordnance Survey Map
3(15)
2.1 Relief
3(1)
2.2 Questioning how to phrase your identification
4(1)
2.3 Deciding who to tell
4(2)
2.4 Thinking about everything over and over again
6(1)
2.5 Have you been being You or have you been being your best impression of Normal?
7(1)
2.6 Paradigms, prejudices and neuro-normative narratives
7(5)
2.7 Wrestling with your own biases, prejudices and stereotypes
12(6)
3 Travelling from autism awareness to autistic identity
18(16)
3.1 Difference
19(1)
3.2 Awareness
19(5)
3.3 Understanding
24(1)
3.4 Acceptance
25(1)
3.5 Recognising
25(3)
3.6 Identity
28(6)
4 Fragments of difference
34(4)
4.1 Playgroup
34(1)
4.2 The playground
35(1)
4.3 Another playground
35(1)
4.4 Shadows
36(1)
4.5 Trees and toilets
36(1)
4.6 Sticks and stones
37(1)
5 Reflections on difference
38(6)
5.1 Everyone is different
38(1)
5.2 Could things have been different?
39(1)
5.3 Slow-motion memories
40(4)
6 Fragments of awareness
44(13)
6.1 Watching paint dry
44(1)
6.2 The yoghurt conundrum
45(1)
6.3 Scripting conversation
46(2)
6.4 Job interview
48(9)
7 Moving between difference and awareness
57(2)
7.1 Realising difference
57(1)
7.2 Reflections on awareness
58(1)
8 Diagnosis
59(9)
8.1 Fixing
59(1)
8.2 Masking
60(2)
8.3 Unveiling
62(1)
8.4 Going to the doctor
63(3)
8.5 Going to the clinical psychologist
66(2)
9 The report
68(12)
9.1 A grown-up child
69(1)
9.2 Emotions
70(2)
9.3 Social skills
72(3)
9.3.1 Perspective on `success'
74(1)
9.4 Forming relationships
75(1)
9.5 Communication
75(2)
9.5.1 Communication in context
76(1)
9.5.2 Communication within relationships
76(1)
9.6 Fixed and focused thinking
77(1)
9.7 Reflection: a mosaic
78(2)
10 Blog part one: the first weeks after diagnosis
80(17)
10.1 Does this suit me?
81(1)
10.2 Week one wobbles
82(2)
10.3 Telling people
84(4)
10.4 You do not seem autistic
88(3)
10.5 I am autistic: I am English
91(1)
10.6 Hiding in the closet
92(1)
10.7 Even `out' it is still locked inside
93(3)
10.8 I am not right anymore
96(1)
11 Reflecting on the impact of diagnosis on my identity
97(18)
11.1 Identity erased
97(2)
11.2 Say Yes to the Dress
99(3)
11.2.1 Repeated study
100(2)
11.3 Deficit and pathology
102(9)
11.4 Coming out
111(4)
12 Blog part two: the first months after diagnosis
115(18)
12.1 Give up masking?
115(2)
12.2 Double thinking diminishes me
117(1)
12.3 Blog part two
117(16)
12.3.1 Is my binary thinking right or wrong?
118(1)
12.3.2 So cross I could cry
119(2)
12.3.3 Worn out by wearing so many layers
121(1)
12.3.4 Absence makes the heart grow fonder
121(1)
12.3.5 Sticks and stones
122(4)
12.3.6 Barriers between the neurotypical, the self-diagnosed neurodivergent and the professionally diagnosed neurodivergent communities
126(2)
12.3.7 Is my love like your love?
128(2)
12.3.8 Friend or symptom?
130(3)
13 Reflection
133(25)
13.1 Looking back
133(7)
13.2 Looking forward - acceptance
140(2)
13.3 Everyone
142(7)
13.4 Life
149(5)
13.5 Suicide
154(4)
14 Blog part three: half a year after diagnosis
158(16)
14.1 Lacking in the social graces
159(1)
14.2 Glass layers
160(1)
14.3 All they can be?
161(1)
14.4 Here be dragons
162(3)
14.5 I can't keep up
165(3)
14.6 I make up stories
168(2)
14.7 Ticking the right boxes
170(2)
14.8 Just out of reach
172(2)
15 Reflection: history repeating
174(5)
16 Love across a neurodiverse divide (explanations of a photoblog)
179(13)
16.1 An empty space on brand new shelves
179(1)
16.2 A door open, the same door pictured ajar and closed
180(2)
16.3 A screen shot of a WhatsApp message
182(1)
16.4 A tablet mounted on an adjustable stand
183(1)
16.5 Britney's shaven head
184(1)
16.6 An old desktop computer
185(1)
16.7 My reflection in a train vestibule window
185(1)
16.8 A single eye
185(1)
16.9 A packet of antibiotics
186(2)
16.10 A cartoon of stick men entitled `Call a spade a spade'
188(1)
16.11 Me five months pregnant wearing workout clothing
188(1)
16.12 A crystal ball
189(3)
17 Reflection: interoception
192(12)
17.1 Are you excited?
192(3)
17.2 Smiling at work
195(1)
17.3 How are you?
196(2)
17.4 Interoception
198(2)
17.5 An implausible world
200(4)
18 Emotional connection
204(28)
18.1 Friendships and emotions
206(9)
18.2 Emotional shutdown
215(1)
18.3 Divorce
216(10)
18.4 Dangers of misinterpretation
226(3)
18.5 The picture of my son and me
229(3)
19 Pregnancy (explanations of a photoblog)
232(15)
19.1 A pack of information about pregnancy
232(3)
19.2 A urine sample pot
235(2)
19.3 A scrap of paper with a few inadequate notes scrawled upon it
237(5)
19.4 Me with a newborn standing in a beam of sunlight in an orchard outside a small cottage hospital in Germany
242(5)
20 Special interests
247(14)
20.1 My special interest
249(12)
21 Reflection: recognising the impossibility of change was crucial
261(3)
22 To be identified is our pride
264(6)
Bibliography 270(28)
Notes 298(2)
Index 300
Joanna Grace is the founder of The Sensory Projects and works as a sensory engagement and inclusion specialist. She has been a special school teacher, a foster carer and a support worker for people with disabilities and neurological diff erences. She grew up on a boat at sea and now lives in rural Cornwall close to the ocean that she loves. Joanna is autistic.