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E-raamat: Children with Neurodevelopmental Disabilities: The Essential Guide to Assessment and Management

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A comprehensive textbook on the practice of paediatric neurodisability, written by practitioners and experts. Using a problem-oriented approach, the authors give best-practice guidance, and centre on the needs of the child and family, working in partnership with multi-disciplinary, multi-agency teams. Drawing on evidence-based practice to provide a ready reference for managing common problems encountered in practice.

Chapters open with real life clinical case scenarios and lead onto a problem-based approach. The book covers the practicalities of assessment, management and care of children with a wide range of disabling conditions and also provides tools and templates for practising paediatricians. The text is illustrated with clear tables, figures, diagrams and flow charts to enable easy referencing. Each section has guidance on further reading, useful websites and other information useful for families.


Readership

  1. Paediatricians (trainees in community and neurodisability paediatrics; consultants in community and general paediatrics.
  2. Allied Health Professionals – physiotherapists, occupational therapists, speech and language therapists
  3. Educational Psychologists and Clinical Psychologists working with children
  4. Other professionals working with disabled children, young people and their families.
Authors' Appointments xi
Foreword xiii
Preface xv
Section 1 Health And Disability
1(18)
1 Health, disability and functioning
3(6)
Arnab Seal
2 Quality of life
9(4)
David Cundall
3 Prevention of disability and health promotion
13(6)
Arnab Seal
Section 2 Development
19(40)
4 Child development
21(38)
Anne M. Kelly
Section 3 Assessment
59(22)
5 Assessment and formulation
61(20)
Anne M. Kelly
Arnab Seal
Gillian Robinson
Section 4 Impairment Of Motor Function
81(52)
6 The infant with hypotonia
83(8)
Gillian Robinson
7 The child with delayed walking or abnormal gait
91(4)
Gillian Robinson
8 The stiff child or the child with increased muscle tone
95(8)
Gillian Robinson
9 The child with ongoing involuntary movements
103(10)
Gillian Robinson
10 The child with paroxysmal movement disorder
113(10)
Gillian Robinson
11 Scoliosis
123(4)
Gillian Robinson
12 The clumsy child
127(6)
Gillian Robinson
Section 5 Communication
133(28)
13 Communication disorders
135(26)
Anne M. Kelly
Joanne Sandiford
Section 6 Learning Difficulties And Loss Of Skills
161(46)
14 Disordered development and learning disability
163(16)
Karen Horridge
15 Educational underattainment or the child failing at school
179(18)
Gillian Robinson
16 Loss of previously acquired skills
197(10)
Arnab Seal
Section 7 Behaviour Disorders
207(28)
17 Behaviour and understanding and coping with disability
209(6)
Martina Waring
Arnab Seal
18 Behaviour in children with disabilities
215(8)
Martina Waring
Arnab Seal
19 Common behavioural disorders
223(12)
Arnab Seal
Section 8 Sensoryimpairment
235(52)
20 Hearing impairment and deafness
237(26)
Arnab Seal
Gillian Robinson
Anne M. Kelly
21 Visual impairment
263(24)
Alison Salt
Section 9 High-Risk Groups
287(30)
22 Extremely preterm infants and neonatal encephalopathy
289(10)
Arnab Seal
23 Congenital infections and toxins
299(14)
Anne M. Kelly
24 Abuse resulting in disability
313(4)
David Cundall
Gillian Robinson
Section 10 Specific Conditions And Disorders
317(124)
25 Cerebral palsy
319(28)
Jane Williams
Anne M. Kelly
26 Epilepsy
347(20)
Jane Williams
27 Autism spectrum disorders
367(18)
Jeremy Parr
28 Attention difficulties
385(12)
Val Harpin
29 Neuromuscular disorders
397(12)
Anne-Marie Childs
30 Acquired brain injury
409(10)
Gillian Robinson
31 Spinal cord disorders and hydrocephalus' in children
419(12)
Arnab Seal
32 Musculoskeletal conditions
431(10)
Arnab Seal
Anne M. Kelly
Section 11 Genetics
441(56)
33 Genetic conditions
443(54)
Mohnish Suri
Anne M. Kelly
Section 12 Partnerships With Families
497(40)
34 Talking to families and carers
499(4)
Arnab Seal
35 The impact of childhood disability on the family
503(4)
Lorna Highet
Anne M. Kelly
Anne Hall
36 Supporting families during the process of adjustment
507(4)
Gillian Robinson
37 Early support
511(6)
Gillian Robinson
38 Cultural perspectives
517(8)
Arnab Seal
39 Ethical perspectives
525(4)
Gillian Robinson
Anne M. Kelly
40 Access to leisure activities
529(6)
Donna Hilton
Jane Williams
41 Bullying
535(2)
Gillian Robinson
Section 13 Frameworks For Family Support
537(54)
42 Health services
539(8)
Gillian Robinson
43 Children in hospital
547(4)
Jane Williams
44 Supporting the needs of children and their families
551(8)
Lorna Highet
45 Voluntary sector
559(10)
Christine Lenehan
Amanda Allard
46 Legal frameworks for support
569(4)
Christine Lenehan
Amanda Allard
47 Education
573(8)
Gail Treml
48 Transition planning: a health perspective
581(6)
Shiela Puri
49 Advocacy
587(4)
Arnab Seal
Section 14 Caring For A Child With A Disability
591(90)
50 Feeding problems and growth failure
593(14)
Anne M. Kelly
Helen Harrison
51 Drooling
607(4)
Anne M. Kelly
52 Tracheostomy and airway support
611(4)
Anne M. Kelly
53 Pain in children with complex needs
615(8)
Arnab Seal
54 Sleep disorders
623(12)
Arnab Seal
55 Continence
635(12)
Gillian Robinson
56 Bathing
647(2)
Gillian Robinson
57 Oral hygiene
649(2)
Gillian Robinson
58 Dressing
651(2)
Gillian Robinson
59 Optimizing participation: the role of assistive technology
653(6)
Benita Powrie
60 Puberty
659(8)
Anne M. Kelly
61 Child abuse
667(6)
David Cundall
Gillian Robinson
62 Life-shortening conditions and planning for the end of life
673(8)
Toni Wolff
Anne M. Kelly
Section 15 Appendices
681(36)
Index 717
Dr Arnab Seal (MD, DCH, DNB (India), FRCPH) is a Consultant Paediatrician currently working in Leeds, UK, practising general and community paediatrics. 

Dr Gillian Robinson (MB, ChB, MRCPCH, MMedSc) is a Consultant Community Paedatrician working in Leeds, both in neurodisability and child protection. 

Dr Anne M Kelly (MB BS, MRCPCH, DCH, MMed Sci) is a Consultant Paediatrician working in Leeds, and has worked both in acute and community paediatrics and is currently focusing on neurodisability and child protection. 

Dr Jane Williams (MB BS DCH MRCP FRCPCH), is a Consultant Paediatrician working in community, child development centre and hospital settings.  Chair of BACD 2007-2010, and member of NICE Guideline Development Group on managing spasticity (2012).